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新西兰成年自闭症患者对青少年及成年期自闭症诊断过程的调查。

A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood.

机构信息

Telethon Kids Institute, University of Western Australia, PO Box 855, Perth, WA, 6872, Australia.

School of Allied Health, Curtin University, Perth, WA, Australia.

出版信息

J Autism Dev Disord. 2022 Feb;52(2):771-781. doi: 10.1007/s10803-021-04983-0. Epub 2021 Mar 31.

Abstract

The diagnostic experiences of autistic adults in New Zealand have not been investigated and little is known globally about autistic adults' satisfaction with the autism diagnostic process. This study describes the diagnostic experiences of 70 autistic adults living in New Zealand and explores how these experiences are related to satisfaction during three stages of the diagnostic process. The results show that autistic adults were reasonably satisfied with the early query and diagnostic assessment stages, but were dissatisfied with the post-diagnostic support stage, with significant unmet needs. Dissatisfaction during the post-diagnostic support stage was also related to satisfaction during previous stages and poor coordination of supports. Suggestions are made on how to improve the autism diagnostic pathway for autistic adults in New Zealand.

摘要

新西兰成年自闭症患者的诊断经历尚未得到调查,全球范围内对于自闭症成年患者对自闭症诊断过程的满意度也知之甚少。本研究描述了居住在新西兰的 70 名自闭症成年患者的诊断经历,并探讨了这些经历与诊断过程三个阶段的满意度之间的关系。结果表明,自闭症成年患者对早期查询和诊断评估阶段的满意度尚可,但对诊断后的支持阶段的满意度较低,存在明显的未满足需求。诊断后支持阶段的不满也与前几个阶段的满意度以及支持的协调不力有关。针对如何改善新西兰成年自闭症患者的自闭症诊断途径提出了建议。

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