Paylor Jonathan, McKevitt Christopher
School of Population Health and Environmental Sciences, King's College London, London, United Kingdom.
Front Sociol. 2019 Apr 5;4:23. doi: 10.3389/fsoc.2019.00023. eCollection 2019.
In this perspective paper, we explore the growing enthusiasm for "co-produced" research, focusing in particular on the United Kingdom's National Institute for Health Research's (NIHR) recent adoption of the term co-production. We consider how this interest in co-production is driven by concerns that patient and public involvement (PPI) in health research tends to be "tokenistic" and to reproduce power imbalances between researchers and lay contributors. We argue that these apparent implementation "barriers" or "inconsistencies" need to be understood in relation to the various elements that the institutionalisation of PPI brings together. We show how these elements are articulated in such a way that consumer, managerial, and performative logics and practices are dominant, resulting in limits being placed on the scope and forms of PPI, and the emergence of acts of recalcitrance and impression management. By considering the alternative discursive repertoires made available through co-production, we point to the possibilities co-production presents for moving beyond these dominant tendencies. We argue, however, that such possibilities need to be understood in relation to the constraints of the present. In doing so, we draw attention to the tenacity of the articulations that have historically constituted the institutionalisation of PPI.
在这篇观点论文中,我们探讨了对“共同产生”研究日益增长的热情,尤其关注英国国家卫生研究院(NIHR)最近采用的共同产生这一术语。我们思考了这种对共同产生的兴趣是如何由以下担忧所驱动的:即患者和公众参与(PPI)在健康研究中往往是“象征性的”,并且会重现研究人员与非专业参与者之间的权力不平衡。我们认为,这些明显的实施“障碍”或“不一致之处”需要结合PPI制度化所涉及的各种要素来理解。我们展示了这些要素是如何以消费者、管理和表演逻辑及实践占主导的方式被阐述的,从而导致PPI的范围和形式受到限制,以及出现抗拒行为和印象管理行为。通过考虑共同产生所提供的替代话语资源,我们指出了共同产生为超越这些主导趋势所带来的可能性。然而,我们认为,这种可能性需要结合当下的限制来理解。在此过程中,我们提请注意历史上构成PPI制度化的阐述的顽固性。