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新冠疫情期间自闭症谱系障碍儿童的家庭教育:印度尼西亚母亲的经历

Home education for children with autism spectrum disorder during the COVID-19 pandemic: Indonesian mothers experience.

作者信息

Daulay Nurussakinah

机构信息

Department of Counseling, Faculty of Tarbiyah and Teaching, Universitas Islam Negeri Sumatera Utara, Indonesia.

出版信息

Res Dev Disabil. 2021 Jul;114:103954. doi: 10.1016/j.ridd.2021.103954. Epub 2021 Apr 5.

DOI:10.1016/j.ridd.2021.103954
PMID:33882385
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9758886/
Abstract

This study aimed to explore the experiences of mothers and efforts in implementing home education for children with autism, during the COVID-19 pandemic in Indonesia. Five mothers were recruited as participants and interviewed online, as the data obtained were examined through the use of thematic analysis. Also, three main themes were shown, (1) Mothers' experience in implementing home education, as regards adaptability and burden of caregiving, (2) The constraints in home education implementation, as regards maladaptive behaviours of ASD and emerging negative emotions, (3) The efforts to alleviate barriers, as regards problem-focused and religious copings. Also, the implementation of home education during the pandemic was less than optimal, due to the increase in maladaptive behaviours of the autistic children, low adaptability, the burden of caregiving, and emerging negative emotions. Appropriate coping strategies were also observed to help mothers in alleviating the constraints to implementing home education and parenting stress.

摘要

本研究旨在探讨印度尼西亚新冠疫情期间,自闭症儿童母亲实施家庭教育的经历和付出。招募了五位母亲作为参与者并进行线上访谈,通过主题分析对所获数据进行审视。研究还呈现了三个主要主题:(1)母亲在实施家庭教育方面的经历,涉及适应性和照顾负担;(2)家庭教育实施中的制约因素,涉及自闭症谱系障碍的适应不良行为和新出现的负面情绪;(3)缓解障碍的努力,涉及以问题为导向的应对方式和宗教应对方式。此外,由于自闭症儿童适应不良行为增加、适应性低、照顾负担以及新出现的负面情绪,疫情期间家庭教育的实施效果不尽人意。研究还观察到适当的应对策略有助于母亲缓解实施家庭教育的制约因素和育儿压力。

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