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一种支持自闭症谱系障碍家庭社交互动的多学科远程康复方法:应对COVID-19的意大利数字平台

A Multidisciplinary Telerehabilitation Approach for Supporting Social Interaction in Autism Spectrum Disorder Families: An Italian Digital Platform in Response to COVID-19.

作者信息

Vallefuoco Ersilia, Purpura Giulia, Gison Giovanna, Bonifacio Andrea, Tagliabue Luca, Broggi Fiorenza, Scuccimarra Goffredo, Pepino Alessandro, Nacinovich Renata

机构信息

SInAPSi Centre, University of Naples Federico II, 80126 Naples, Italy.

School of Medicine and Surgery, University of Milano Bicocca, 20900 Monza, Italy.

出版信息

Brain Sci. 2021 Oct 25;11(11):1404. doi: 10.3390/brainsci11111404.

Abstract

Due to its complexity and high variability in symptomology, autism spectrum disorder (ASD) requires a coordinated and multidisciplinary intervention to better support the different programs over time and to promote social interactions in all contexts of life. Telemedicine can offer a valuable contribution in this regard, providing low-cost and portable applications. In this paper, we presented an Italian project, , which aimed to foster collaboration and information sharing between ASD families, health services, and schools. provided a digital platform with several tools that were useful both to enhance general and specific ASD knowledge and to promote personalized programs for children with ASD. We conducted a preliminary user test for the platform with 30 participants (18 therapists and 12 parents of children with ASD) using the system usability scale (SUS). The total mean SUS score (89.2) showed that is an excellent, usable system. Moreover, we extracted the usability and learnability mean components from the SUS scores, which were 96.1 and 61.7, respectively. Our preliminary results indicate that is a very user-friendly application and its innovative telemedicine approach could be ahelpful communication and collaboration tool among the different contexts of care for children with ASD.

摘要

由于自闭症谱系障碍(ASD)症状复杂且高度多变,需要采取协调一致的多学科干预措施,以便随着时间的推移更好地支持不同项目,并在生活的各个场景中促进社交互动。远程医疗在这方面可发挥重要作用,提供低成本且便于携带的应用程序。在本文中,我们介绍了一个意大利项目,该项目旨在促进ASD患儿家庭、医疗服务机构和学校之间的合作与信息共享。该项目提供了一个数字平台,配有多种工具,这些工具既有助于增强对ASD的一般和特定知识的了解,又有助于为ASD患儿推广个性化项目。我们使用系统可用性量表(SUS)对30名参与者(18名治疗师和12名ASD患儿家长)进行了该平台的初步用户测试。SUS总平均分(89.2)表明该项目是一个出色的、可用的系统。此外,我们从SUS分数中提取了可用性和易学性的平均分量,分别为96.1和61.7。我们的初步结果表明,该项目是一个非常用户友好的应用程序,其创新的远程医疗方法可能成为ASD患儿不同护理场景之间有用的沟通与协作工具。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c8d6/8615374/b5c65a4f5df8/brainsci-11-01404-g001.jpg

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