Harefield Respiratory Research Group, Harefield Hospital, Middlesex, UK.
National Heart and Lung Institute, Imperial College, London, UK.
Int J Chron Obstruct Pulmon Dis. 2021 Apr 19;16:1035-1049. doi: 10.2147/COPD.S293048. eCollection 2021.
Hospital at home (HaH) schemes allow early discharge of patients hospitalised with an acute exacerbation of chronic obstructive pulmonary disease (AECOPD). Traditional outpatient pulmonary rehabilitation (PR) following an AECOPD has an established evidence-base, but there are issues with low referral, uptake and completion. One commonly cited barrier to PR post-hospitalisation relates to poor accessibility. To address this, the aim of this project was to enrol service users (patients with COPD and informal carers) and healthcare professionals to co-design a model of care that integrates home-based exercise training within a HaH scheme for patients discharged from hospital following AECOPD.
This accelerated experience-based co-design project included three audio-recorded stakeholder feedback events, using key "touchpoints" from previous qualitative interviews and a recent systematic review. Audio-recordings were inductively analysed using directed content analysis. An integrated model of care was then developed and finalised through two co-design groups, with the decision-making process facilitated by the tables of changes approach.
Seven patients with COPD, two informal carers and nine healthcare professionals (from an existing outpatient PR service and HaH scheme) participated in the stakeholder feedback events. Four key themes were identified: 1) individualisation, 2) progression and transition, 3) continuity between services, and 4) communication between stakeholders. Two patients with COPD, one informal carer and three healthcare professionals participated in the first joint co-design group, with five healthcare professionals attending a second co-design group. These achieved a consensus on the integrated model of care. The agreed model comprised face-to-face supervised, individually tailored home-based exercise training one to three times a week, delivered during HaH scheme visits where possible by a healthcare professional competent to provide both home-based exercise training and usual HaH care.
An integrated model of care has been co-designed by patients with COPD, informal carers and healthcare professionals to address low uptake and completion of PR following AECOPD. The co-designed model of care has now been integrated within a well-established HaH scheme.
家庭医院(HaH)计划允许因慢性阻塞性肺疾病(COPD)急性加重而住院的患者提前出院。COPD 急性加重后传统的门诊肺康复(PR)有明确的循证医学证据,但转诊、参与和完成率低。PR 后普遍存在的一个障碍与可及性差有关。为了解决这个问题,本项目的目的是招募服务使用者(COPD 患者和非正式护理者)和医疗保健专业人员,共同设计一种护理模式,将家庭为基础的运动训练纳入 HaH 计划,为从医院出院的 AECOPD 患者提供服务。
这项加速的基于经验的共同设计项目包括三次音频记录的利益相关者反馈活动,使用之前定性访谈和最近的系统评价的关键“接触点”。使用定向内容分析对音频记录进行归纳分析。然后通过两个共同设计小组开发和最终确定综合护理模式,通过变更表方法促进决策过程。
七名 COPD 患者、两名非正式护理者和九名医疗保健专业人员(来自现有的门诊 PR 服务和 HaH 计划)参加了利益相关者反馈活动。确定了四个关键主题:1)个性化,2)进展和过渡,3)服务连续性,4)利益相关者之间的沟通。两名 COPD 患者、一名非正式护理者和三名医疗保健专业人员参加了第一联合共同设计小组,五名医疗保健专业人员参加了第二次共同设计小组。他们就综合护理模式达成了共识。商定的模式包括每周一到三次面对面监督的、个体化的家庭为基础的运动训练,尽可能在 HaH 计划访问期间由有能力提供家庭为基础的运动训练和常规 HaH 护理的医疗保健专业人员提供。
COPD 患者、非正式护理者和医疗保健专业人员共同设计了一种综合护理模式,以解决 COPD 急性加重后 PR 参与度和完成率低的问题。共同设计的护理模式现已纳入一个成熟的 HaH 计划。