University of Wisconsin -Madison, USA.
Boston Medical Center, USA.
Autism. 2021 Aug;25(6):1694-1708. doi: 10.1177/13623613211001611. Epub 2021 Apr 28.
Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience.
对于自闭症诊断过程中父母的体验，以及这些父母的体验如何帮助解释在被认定有自闭症风险的儿童中，西班牙裔和非西班牙裔家庭之间在诊断时间上存在的差异，人们知之甚少。本研究考察了在自闭症诊断过程中，西班牙裔和非西班牙裔家庭的父母压力、应对方式和家庭影响感知的轨迹。西班牙裔家庭报告的父母压力、应对方式和负面家庭影响水平在整个时间内都较低。此外，随着时间的推移，西班牙裔和非西班牙裔父母在应对方式的使用变化和报告的负面家庭影响程度上存在差异。这些差异揭示了西班牙裔家庭独特的体验和优势。利用这些优势并专注于教育、赋权和适应力的干预措施可能对西班牙裔家庭特别有益，也可能更好地为增加适应力的工作提供信息。
