Goering Sara, Klein Eran, Specker Sullivan Laura, Wexler Anna, Agüera Y Arcas Blaise, Bi Guoqiang, Carmena Jose M, Fins Joseph J, Friesen Phoebe, Gallant Jack, Huggins Jane E, Kellmeyer Philipp, Marblestone Adam, Mitchell Christine, Parens Erik, Pham Michelle, Rubel Alan, Sadato Norihiro, Teicher Mina, Wasserman David, Whittaker Meredith, Wolpaw Jonathan, Yuste Rafael
University of Washington, Seattle, WA USA.
Oregon Health & Science University, Portland, OR USA.
Neuroethics. 2021;14(3):365-386. doi: 10.1007/s12152-021-09468-6. Epub 2021 Apr 29.
Advancements in novel neurotechnologies, such as brain computer interfaces (BCI) and neuromodulatory devices such as deep brain stimulators (DBS), will have profound implications for society and human rights. While these technologies are improving the diagnosis and treatment of mental and neurological diseases, they can also alter individual agency and estrange those using neurotechnologies from their sense of self, challenging basic notions of what it means to be human. As an international coalition of interdisciplinary scholars and practitioners, we examine these challenges and make recommendations to mitigate negative consequences that could arise from the unregulated development or application of novel neurotechnologies. We explore potential ethical challenges in four key areas: identity and agency, privacy, bias, and enhancement. To address them, we propose (1) democratic and inclusive summits to establish globally-coordinated ethical and societal guidelines for neurotechnology development and application, (2) new measures, including "Neurorights," for data privacy, security, and consent to empower neurotechnology users' control over their data, (3) new methods of identifying and preventing bias, and (4) the adoption of public guidelines for safe and equitable distribution of neurotechnological devices.
新型神经技术的进步,如脑机接口(BCI)以及深部脑刺激器(DBS)等神经调节设备,将对社会和人权产生深远影响。虽然这些技术正在改善精神和神经疾病的诊断与治疗,但它们也可能改变个体能动性,并使使用神经技术的人与其自我认知相疏离,对“人意味着什么”的基本观念构成挑战。作为一个跨学科的学者和从业者国际联盟,我们审视这些挑战,并提出建议以减轻新型神经技术无节制发展或应用可能产生的负面后果。我们探讨四个关键领域的潜在伦理挑战:身份与能动性、隐私、偏见和增强。为应对这些挑战,我们提议:(1)召开民主且包容的峰会,为神经技术的开发和应用制定全球协调的伦理和社会准则;(2)采取新措施,包括“神经权利”,以保障数据隐私、安全和同意权,增强神经技术使用者对其数据的控制权;(3)采用识别和预防偏见的新方法;(4)通过关于神经技术设备安全和公平分配的公共准则。