Dalhousie University, Canada.
Labrador Institute of Memorial University, Canada.
Soc Sci Med. 2021 Jun;279:113947. doi: 10.1016/j.socscimed.2021.113947. Epub 2021 May 3.
Indigenous communities across Canada report that transformations in Indigenous health research are needed, where the benefits of research shift intentionally, collaboratively, and with transparency from the researchers directly to Indigenous communities and partners. Despite its challenges and potential for harm, research, if done ethically and with respect and partnership, can be a force for change and will strengthen the efficacy of data on Indigenous Peoples' health and wellbeing.
To characterize the nature, range, and extent of Indigenous health research in Atlantic Canada, and to identify gaps.
Eleven databases were searched using English-language keywords that signify Indigeneity, geographic regions, health, and Indigenous communities in Atlantic Canada between 2001 and May 2020. All references were reviewed independently by two reviewers. Of the 9056 articles identified, 211 articles were retained for inclusion. Data were extracted using a collaboratively developed data charting form.
Indigenous health research in Atlantic Canada has increased over time, covering a diverse range of health topics. The main areas of research included climate change, child and youth health, and food and water security, with the majority of research deriving from Newfoundland and Labrador. Rates of reported community engagement remain relatively low and steady between 2001 and 2020, however there was an increase in researchers seeking Indigenous ethics approvals for such engagement.
This scoping review synthesizes 20 years of Indigenous health research in Atlantic Canada. The results indicate that although there are increases in Indigenous ethics approvals, there is more work needed to ensure that Indigenous Peoples lead, design, and benefit from research conducted in their homelands.
加拿大各地的原住民社区报告称，需要对原住民健康研究进行变革，使研究的惠益从研究人员直接有意、协作和透明地转移到原住民社区和合作伙伴。尽管存在挑战和潜在的危害，但如果研究是在道德、尊重和伙伴关系的基础上进行的，它可以成为变革的力量，并将加强关于原住民人民健康和福祉的数据的效力。
描述加拿大大西洋地区原住民健康研究的性质、范围和程度，并确定差距。
使用表示原住民、地理区域、健康和加拿大大西洋地区原住民社区的英文关键词，在 2001 年至 2020 年 5 月期间在 11 个数据库中进行了搜索。由两名评审员独立审查所有参考文献。在确定的 9056 篇文章中，有 211 篇文章被保留纳入研究。使用共同制定的数据图表表格提取数据。
加拿大大西洋地区的原住民健康研究随着时间的推移而增加，涵盖了广泛的健康主题。主要的研究领域包括气候变化、儿童和青年健康以及食物和水安全，其中大部分研究来自纽芬兰和拉布拉多。报告的社区参与率在 2001 年至 2020 年期间相对较低且稳定，但寻求原住民伦理批准进行此类参与的研究人员有所增加。
这一范围综述总结了加拿大大西洋地区 20 年来的原住民健康研究。结果表明，尽管原住民伦理批准有所增加，但仍需要做更多的工作，以确保原住民人民领导、设计并从在其家园进行的研究中受益。
