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开展针对失语症患者的虚拟研究并需特别考虑相关问题。

Conducting a Virtual Study With Special Considerations for Working With Persons With Aphasia.

作者信息

Doub Ashleigh, Hittson Anne, Stark Brielle C

机构信息

Department of Speech, Language and Hearing Sciences, Indiana University Bloomington.

出版信息

J Speech Lang Hear Res. 2021 Jun 4;64(6):2038-2046. doi: 10.1044/2021_JSLHR-20-00392. Epub 2021 May 21.

Abstract

Purpose The use of technology (e.g., telehealth) in clinical settings has rapidly increased, and its use in research settings continues to grow. The aim of this report is to present one potential solution to a clinical issue that of virtual and remote assessment for the purposes of spoken language research in persons with aphasia (PWA). To do so, we report detailed methods for conducting a multitimepoint (test-retest) virtual paradigm, assessing lifestyle, physiological, cognitive, and linguistic factors in persons with and without aphasia. Method Procedures for virtual assessment are detailed in a sample of adults with no brain damage ( = 24) and PWA ( = 25) on a test-retest paradigm (data collection approximately 10 ± 3 days apart). This report provides practical information about pre-assessment (e.g., recruitment, scheduling), assessment (e.g., aphasia-friendly consent presentation, investigator fidelity), and postassessment (e.g., data storage, quality check) procedures for human behavior research using a virtual platform. Results Preliminary study data are provided, indicating high retention rates, high rates of data acquisition, and feasibility. Common technological troubles and solutions are discussed, and solutions are offered. The results suggest that our pre-assessment, assessment, and postassessment procedures contributed to the success of our study. Conclusions We provide a practical methodology for conducting a multitimepoint study, with considerations for PWA, adding to the body of research on telehealth in clinical populations. Future studies should continue to evaluate telemethodology, which may be core for diversifying studies, improving study retention, and enrolling larger sample sizes. Supplemental Material https://doi.org/10.23641/asha.14608101.

摘要

目的 技术(如远程医疗)在临床环境中的应用迅速增加,其在研究环境中的应用也在持续增长。本报告的目的是针对一个临床问题提出一种潜在解决方案,即针对失语症患者(PWA)进行口语语言研究的虚拟和远程评估。为此,我们报告了进行多时间点(重测)虚拟范式的详细方法,评估有无失语症患者的生活方式、生理、认知和语言因素。方法 在无脑损伤的成年人(n = 24)和PWA(n = 25)样本中,按照重测范式详细说明了虚拟评估程序(数据收集间隔约10±3天)。本报告提供了有关使用虚拟平台进行人类行为研究的预评估(如招募、安排时间)、评估(如失语症友好的同意书展示、研究者保真度)和后评估(如数据存储、质量检查)程序的实用信息。结果 提供了初步研究数据,表明保留率高、数据采集率高且具有可行性。讨论了常见的技术问题及解决方案,并提供了相应对策。结果表明,我们的预评估、评估和后评估程序有助于研究的成功。结论 我们提供了一种进行多时间点研究的实用方法,并考虑了PWA的情况,为临床人群远程医疗研究增添了内容。未来的研究应继续评估远程方法,这可能是使研究多样化、提高研究保留率和纳入更大样本量的核心。补充材料https://doi.org/10.23641/asha.14608101

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本文引用的文献

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Telerehabilitation of Anomia in Primary Progressive Aphasia.原发性进行性失语中命名性失语的远程康复
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