Daraie Saied, Hasanvand Shirin, Goudarzi Fateme, Rassouli Maryam
Student Research Committee, Lorestan University of Medical Sciences, Khorramabad, Iran.
Nursing Department, Lorestan University of Medical Sciences, Khorramabad, Iran.
Iran J Nurs Midwifery Res. 2021 Mar 5;26(2):137-143. doi: 10.4103/ijnmr.IJNMR_173_20. eCollection 2021 Mar-Apr.
The transition of tracheostomy patients to the home poses many challenges for both the patient and the family. Identifying and understanding the experiences of family caregivers pave the road for discovering and meeting care needs. This study has been aimed to explain the experiences of family caregivers of patients with a tracheostomy about patient care at home.
This qualitative study was conducted using a conventional content analysis approach from September 2018 to January 2019. Participants included nine family caregivers and one professional caregiver who were selected through purposive sampling method. The in-depth interviews were conducted at home or in health centers using field notes. Data were recorded manually and analyzed using the five-step method proposed by Granehim and Lundman.
The data led to the emergence of 1591 initial codes, 23 subcategories, and 6 categories. Categories include the need for training, the need for receiving care support, care challenges, care burden, gaining experience, hope, and inner satisfaction.
In this study, the family caregivers faced with lots of challenges in caring patients with tracheostomy so that they were in needs of training and support from professionals. Although they got skillful in care and endure burden, they were so hopeful and satisfied with their attempts. Hence, there is a need for official nongovernmental organizations with the aim of maintaining care and protecting their families.
气管造口术患者向家庭护理的过渡对患者及其家庭都带来了诸多挑战。识别并了解家庭护理人员的经历为发现和满足护理需求铺平了道路。本研究旨在阐释气管造口术患者的家庭护理人员在家庭护理患者方面的经历。
本定性研究采用传统内容分析法，于2018年9月至2019年1月开展。参与者包括通过目的抽样法选取的九名家庭护理人员和一名专业护理人员。深入访谈在患者家中或健康中心进行，并记录现场笔记。数据手动记录，并采用格兰海姆和伦德曼提出的五步分析法进行分析。
数据产生了1591个初始编码、23个亚类和6个类别。类别包括培训需求、接受护理支持的需求、护理挑战、护理负担、获得经验、希望和内心满足感。
在本研究中，家庭护理人员在护理气管造口术患者时面临诸多挑战，因此他们需要专业人员的培训和支持。尽管他们在护理方面变得熟练并承受负担，但他们对自己的努力充满希望且感到满意。因此，需要官方非政府组织来维持护理并保护他们的家庭。
