Teaching Hospital, Hospital Road, Jaffna, Sri Lanka.
Tellipalai Trail Cancer Hospital, Jaffna, Sri Lanka.
Support Care Cancer. 2021 Dec;29(12):7403-7409. doi: 10.1007/s00520-021-06296-5. Epub 2021 May 31.
A breast cancer diagnosis leads to considerable internal conflict and social disruption. Coping with breast cancer may be especially challenging where psychosocial services are not integrated to cancer care. This exploratory descriptive qualitative study delves into breast cancer-associated psychosocial morbidity among women diagnosed with breast cancer at a cancer centre in post-war northern Sri Lanka.
Fifteen women with non-metastatic breast cancer and treated with curative intent, who were undergoing or had completed adjuvant chemotherapy, were included in the study. Data were gathered through semi-structured interviews and thematically analysed.
Aside from the immediate effects of chemotherapy, participants grappled with concerns of body image, social stigma, and dependency while straddling anxieties about the fate of their families and expenses on cancer care. Demonstrating remarkable strength and resilience, however, they drew on their families and communities for support in the absence of a formal system of psychosocial care. These women's narratives shed light on certain universal aspects of the breast cancer experience as well as its specificity in a region devastated by war, where cancer care is delivered with minimal resources.
The findings underscore the need to invest in integrating psychosocial services to chronic illness care in low- and middle-income settings.
乳腺癌诊断会导致患者产生强烈的内心冲突和社会混乱。如果癌症治疗中没有整合社会心理服务,那么患者可能会特别难以应对乳腺癌。本探索性描述性定性研究深入探讨了斯里兰卡战后北部癌症中心诊断为乳腺癌的女性的乳腺癌相关社会心理发病率。
研究纳入了 15 名患有非转移性乳腺癌且接受治愈性治疗、正在接受或已完成辅助化疗的女性。通过半结构化访谈收集数据,并进行主题分析。
除了化疗的直接影响外,参与者还对身体形象、社会耻辱和依赖感到担忧,同时对家庭的命运和癌症治疗费用感到焦虑。然而,她们表现出了非凡的力量和韧性,在没有正式社会心理护理系统的情况下,依靠家庭和社区获得支持。这些女性的叙述揭示了在一个饱受战争蹂躏的地区,乳腺癌经历的某些普遍性方面以及其在该地区的特殊性,在这个地区,癌症治疗是在资源有限的情况下进行的。
研究结果强调需要投资于将社会心理服务整合到中低收入国家的慢性病护理中。