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肌痛性脑脊髓炎/慢性疲劳综合征的孤独、隔离和疏离影响

The Lonely, Isolating, and Alienating Implications of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

作者信息

Boulazreg Samir, Rokach Ami

机构信息

Faculty of Education, University of Western Ontario, London N6A 3K7, ON, Canada.

Department of Psychology, York University, Toronto M3J 1P3, ON, Canada.

出版信息

Healthcare (Basel). 2020 Oct 20;8(4):413. doi: 10.3390/healthcare8040413.

Abstract

This article provides a narrative review on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) through a psychosocial lens and examines how this impairment affects its sufferers during adolescence and adulthood, as well as how it impacts family caregivers and healthcare professionals' mental health. Since there has been a lack of investigation in the literature, the primary psychosocial stressor that this review focuses on is loneliness. As such, and in an attempt to help establish a theoretical framework regarding how loneliness may impact ME/CFS, loneliness is comprehensively reviewed, and its relation to chronic illness is described. We conclude by discussing a variety of coping strategies that may be employed by ME/CFS individuals to address their loneliness. Future directions and ways with which the literature may investigate loneliness and ME/CFS are discussed.

摘要

本文从社会心理角度对肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)进行了叙述性综述,探讨了这种疾病在青少年和成年期如何影响患者,以及它如何影响家庭照顾者和医护人员的心理健康。由于文献中缺乏相关研究,本综述关注的主要社会心理压力源是孤独感。因此,为了帮助建立一个关于孤独感可能如何影响ME/CFS的理论框架,本文对孤独感进行了全面综述,并描述了其与慢性病的关系。我们通过讨论ME/CFS患者可能采用的各种应对孤独感的策略来得出结论。还讨论了文献研究孤独感和ME/CFS的未来方向和方法。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ce4b/7711762/880f63c33b65/healthcare-08-00413-g001.jpg

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