Patterson Pandora, Allison Kimberley R, Bibby Helen, Thompson Kate, Lewin Jeremy, Briggs Taia, Walker Rick, Osborn Michael, Plaster Meg, Hayward Allan, Henney Roslyn, George Shannyn, Keuskamp Dominic, Anazodo Antoinette
Research, Evaluation and Policy Unit, CanTeen, Sydney, NSW 2042, Australia.
Faculty of Medicine and Health, University of Sydney, Sydney, NSW 2006, Australia.
Cancers (Basel). 2021 May 28;13(11):2675. doi: 10.3390/cancers13112675.
Adolescents and young adults (aged 15-25 years) diagnosed with cancer have unique medical and psychosocial experiences and care needs, distinct from those of paediatric and older adult patients. Since 2011, the Australian Youth Cancer Services have provided developmentally appropriate, multidisciplinary and comprehensive care to these young patients, facilitated by national service coordination and activity data collection and monitoring. This paper reports on how the Youth Cancer Services have conceptualised and delivered quality youth cancer care in four priority areas: clinical trial participation, oncofertility, psychosocial care and survivorship. National activity data collected by the Youth Cancer Services between 2016-17 and 2019-20 are used to illustrate how service monitoring processes have facilitated improvements in coordination and accountability across multiple indicators of quality youth cancer care, including clinical trial participation, access to fertility information and preservation, psychosocial screening and care and the transition from active treatment to survivorship. Accounts of both service delivery and monitoring and evaluation processes within the Australian Youth Cancer Services provide an exemplar of how coordinated initiatives may be employed to deliver, monitor and improve quality cancer care for adolescents and young adults.
被诊断患有癌症的青少年和青年（年龄在15至25岁之间）有着独特的医疗和心理社会经历及护理需求，与儿科和老年患者不同。自2011年以来，澳大利亚青年癌症服务机构在国家服务协调以及活动数据收集与监测的推动下，为这些年轻患者提供了适合其发育阶段的多学科综合护理。本文报告了青年癌症服务机构在四个优先领域如何构思并提供优质的青年癌症护理：临床试验参与、肿瘤生育学、心理社会护理和 survivorship。青年癌症服务机构在2016 - 17年至2019 - 20年期间收集的国家活动数据用于说明服务监测流程如何促进了跨多个优质青年癌症护理指标的协调与问责制的改善，这些指标包括临床试验参与、获得生育信息和保存服务、心理社会筛查与护理以及从积极治疗到 survivorship 的过渡。澳大利亚青年癌症服务机构内的服务提供以及监测与评估流程的情况提供了一个范例，展示了如何通过协调举措来为青少年和青年提供、监测和改善优质癌症护理。 （注：“survivorship”在医学语境下可能有特定含义，但文中未明确给出准确中文对应词，暂保留英文。）
