Lyes Susannah, Richards-Belle Alvin, Connolly Bronwen, Rowan Kathryn M, Hinton Lisa, Locock Louise
Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.
Clinical Trials Unit, Intensive Care National Audit & Research Centre (ICNARC), London, UK.
J Intensive Care Soc. 2020 Nov;21(4):312-319. doi: 10.1177/1751143719883563. Epub 2019 Nov 11.
The experiences and satisfaction of family members of patients are important indicators of healthcare quality in the intensive care unit. The family satisfaction in the intensive care unit (FS-ICU-24) questionnaire, developed in Canada and now validated in the UK, is becoming the gold standard measure to evaluate family members' satisfaction with the intensive care unit. To inform future use of the UK FS-ICU-24 to evaluate quality improvement strategies aimed at improving family satisfaction with the intensive care unit, we set out to explore the extent to which the 24-scored items and domains of the UK FS-ICU-24 reflect common suggestions and priorities for quality improvement self-reported as important to family members in the UK.
Two data sources were thematically analysed - (1) open-text responses from family members who completed the UK FS-ICU-24 in a large observational cohort study; (2) a set of quality improvement activities generated by patients, family members and staff through experience-based co-design in a mixed-methods' intensive care unit quality improvement study. Summarised themes were then mapped to the 24-scored items and domains of the UK FS-ICU-24 to assess coverage by the UK FS-ICU-24.
We found a good degree of coverage between the topics and themes identified as important to family members with the 24-scored items and domains of the UK FS-ICU-24.
Our study confirms the face validity of the UK FS-ICU-24 and indicates that its inclusion as an outcome measure for evaluating quality improvement strategies aimed at improving family satisfaction with the intensive care unit is appropriate.
患者家庭成员的体验和满意度是重症监护病房医疗质量的重要指标。在加拿大开发并已在英国验证的重症监护病房家属满意度问卷（FS-ICU-24），正成为评估家庭成员对重症监护病房满意度的金标准。为了为未来使用英国版FS-ICU-24评估旨在提高家庭成员对重症监护病房满意度的质量改进策略提供参考，我们着手探讨英国版FS-ICU-24的24个计分项目和领域在多大程度上反映了英国家庭成员自我报告的对质量改进的常见建议和优先事项。
对两个数据源进行了主题分析——（1）在一项大型观察性队列研究中完成英国版FS-ICU-24的家庭成员的开放式文本回答；（2）在一项混合方法的重症监护病房质量改进研究中，患者、家庭成员和工作人员通过基于经验的共同设计产生的一组质量改进活动。然后将总结出的主题映射到英国版FS-ICU-24的24个计分项目和领域，以评估英国版FS-ICU-24的覆盖范围。
我们发现，被确定为对家庭成员重要的主题与英国版FS-ICU-24的24个计分项目和领域之间有良好的覆盖程度。
我们的研究证实了英国版FS-ICU-24的表面效度，并表明将其作为评估旨在提高家庭成员对重症监护病房满意度的质量改进策略的结果指标是合适的。
