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在 COVID-19 背景下,对远程医疗提供的自闭症儿童照顾者培训的务实调整:来自美国和南非的观点。

Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa.

机构信息

Duke University, USA.

Duke Center for Autism and Brain Development, USA.

出版信息

Autism. 2022 Jan;26(1):270-275. doi: 10.1177/13623613211022585. Epub 2021 Jun 8.

Abstract

COVID-19 caused many autism spectrum disorder caregiver-coaching studies to move to telehealth. Telehealth can increase the diversity of people who take part in research. This matters because most autism spectrum disorder studies have included people who have resources, are White, and live in North America and Europe. When study participants are similar, it is hard to understand which interventions can help different types of people who live in different parts of the world. While telehealth may allow more people to take part in research, it needs to "fit" the local context and consider the "digital divide" because many people around the world have no access to computers and the Internet. This short report describes changes to two research studies that include caregiver coaching based on the Early Start Denver Model in the United States and South Africa. We describe how the local context, including technology and Internet access, guided the telehealth approach. By doing so, we highlight ways to make telehealth available to more people around the world. The pandemic can help us understand how telehealth can "fit" diverse places and support high-quality research. It is important that study changes are tracked and we assess how well the changes work. COVID-19 telehealth changes to caregiver coaching can result in new ways to reach more people around the world.

摘要

COVID-19 导致许多自闭症谱系障碍照顾者培训研究转向远程医疗。远程医疗可以增加参与研究的人群的多样性。这很重要,因为大多数自闭症谱系障碍研究都包括有资源、是白人、居住在北美和欧洲的人。当研究参与者相似时,就很难理解哪些干预措施可以帮助生活在世界不同地区的不同类型的人。虽然远程医疗可能允许更多的人参与研究,但它需要“适应”当地的情况,并考虑“数字鸿沟”,因为世界上许多人无法使用计算机和互联网。本简短报告描述了两项基于美国和南非早期启动丹佛模式的照顾者培训的研究的变化。我们描述了当地情况,包括技术和互联网接入,是如何指导远程医疗方法的。通过这样做,我们强调了为全世界更多的人提供远程医疗的方法。大流行可以帮助我们了解远程医疗如何“适应”不同的地方并支持高质量的研究。重要的是要跟踪研究变化,并评估这些变化的效果。COVID-19 对照顾者培训的远程医疗变化可以为全世界更多的人提供新的联系方式。

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