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量化阿尔茨海默病预防研究的招募来源和参与者沟通偏好。

Quantifying Recruitment Source and Participant Communication Preferences for Alzheimer's Disease Prevention Research.

机构信息

Jerri D. Edwards, University of South Florida, 3515 E. Fletcher Ave, MDT 200, Tampa, FL 33613, USA, Telephone: (813) 974-6703; Fax (813) 974-2882,

出版信息

J Prev Alzheimers Dis. 2021;8(3):299-305. doi: 10.14283/jpad.2021.20.

DOI:10.14283/jpad.2021.20
PMID:34101787
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8269052/
Abstract

BACKGROUND

Evidence on effective engagement of diverse participants in AD prevention research is lacking.

OBJECTIVES

To quantify recruitment source in relation to race, ethnicity, and retention.

DESIGN

Prospective cohort study.

SETTING

University lab.

PARTICIPANTS

Participants included older adults (N=1170) who identified as White (86%), Black (8%), and Hispanic/Latino ethnicity (6%).

MEASUREMENTS

The Cognitive Aging Lab Marketing Questionnaire assessed recruitment source, social media use, and research opportunity communication preferences.

RESULTS

Effective recruitment methods and communication preferences vary by race and ethnicity. The most common referral sources were postcards for racial minorities, friend/family referrals for Hispanic/Latinos, and the newspaper for Whites. Whereas Whites preferred email communications, Hispanic/Latinos preferred texts.

CONCLUSIONS

Recruiting diverse samples in AD prevention research is clinically relevant given high AD-risk of minorities and that health disparities are propagated by their under-representation in research. Our questionnaire and these results may be applied to facilitate effective research engagement.

摘要

背景

缺乏关于多元化参与者有效参与 AD 预防研究的证据。

目的

定量分析与种族、民族和保留率有关的招募来源。

设计

前瞻性队列研究。

地点

大学实验室。

参与者

参与者包括自认为是白人(86%)、黑人(8%)和西班牙裔/拉丁裔(6%)的老年人(N=1170)。

测量

认知老化实验室营销问卷评估招募来源、社交媒体使用情况和研究机会交流偏好。

结果

有效的招募方法和沟通偏好因种族和民族而异。最常见的推荐来源是针对少数族裔的明信片、针对西班牙裔/拉丁裔的朋友/家人推荐以及针对白人的报纸。而白人更喜欢电子邮件沟通,西班牙裔/拉丁裔更喜欢短信。

结论

鉴于少数民族患 AD 的风险较高,以及他们在研究中的代表性不足导致健康差距扩大,在 AD 预防研究中招募多样化的样本具有临床意义。我们的问卷和这些结果可用于促进有效的研究参与。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8eed/12280710/915142aecedd/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8eed/12280710/915142aecedd/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8eed/12280710/915142aecedd/gr1.jpg

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