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作为方法的隐喻:关于痴呆症历程可视化的方法论思考

Metaphor as methodology: Methodological reflections on visualizing the dementia journey.

作者信息

Wiersma Elaine C, Dupuis Sherry L, Sameshima Pauline, Caffery Philip, Harvey David

机构信息

Centre for Education and Research on Aging & Health, Department of Health Sciences, Lakehead University, Canada.

Department of Recreation and Leisure Studies, University of Waterloo, Canada.

出版信息

Dementia (London). 2025 Feb;24(2):193-213. doi: 10.1177/14713012241295954. Epub 2024 Dec 1.

DOI:10.1177/14713012241295954
PMID:39618008
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11780962/
Abstract

Metaphors to describe and understand dementia have been used in Western culture for many years. However, the ways in which people living with dementia and care partners use metaphors and symbols to illustrate and give meaning to their own experiences has been less understood. In this paper we explore the use of metaphor as methodology-- a way to support people living with dementia and their care partners in reflecting on and sharing their experiences of dementia. More specifically, drawing on our experiences using metaphor and symbols to map out the dementia journey from the perspectives of people living with dementia, care partners, and health and social care providers in Ontario, Canada, we describe our process of employing metaphor as methodology. We reflect on the use of metaphor as methodology through framing the dementia experience, exploring complexity, and representing multidimensionality. The use of metaphors has the potential to open space for new understandings of dementia.

摘要

在西方文化中,用于描述和理解痴呆症的隐喻已被使用多年。然而,痴呆症患者及其护理伙伴使用隐喻和符号来阐释自身经历并赋予其意义的方式却鲜为人知。在本文中,我们探讨将隐喻作为一种方法的运用——一种支持痴呆症患者及其护理伙伴反思和分享他们痴呆症经历的方式。更具体地说,基于我们在加拿大安大略省利用隐喻和符号从痴呆症患者、护理伙伴以及健康和社会护理提供者的角度勾勒痴呆症历程的经验,我们描述了将隐喻用作方法的过程。我们通过构建痴呆症体验、探索复杂性和呈现多维度来反思将隐喻作为方法的运用。隐喻的使用有可能为对痴呆症的新理解开辟空间。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef34/11780962/41773ded570e/10.1177_14713012241295954-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef34/11780962/f2eecd26bc21/10.1177_14713012241295954-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef34/11780962/bb17c542c6cd/10.1177_14713012241295954-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef34/11780962/41773ded570e/10.1177_14713012241295954-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef34/11780962/f2eecd26bc21/10.1177_14713012241295954-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef34/11780962/bb17c542c6cd/10.1177_14713012241295954-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef34/11780962/41773ded570e/10.1177_14713012241295954-fig3.jpg

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本文引用的文献

1
Machines, journeys, prisons and yo-yos: Metaphors of pain, illness and medicine in consultations with chronic pain patients.机器、旅程、监狱和悠悠球:慢性疼痛患者咨询中疼痛、疾病和医学的隐喻。
Soc Sci Med. 2023 Aug;330:116043. doi: 10.1016/j.socscimed.2023.116043. Epub 2023 Jun 26.
2
Using Journey Mapping to support staff, family members and allies of people with dementia to think and act differently during a care transition: The benefits and limits of care imagination.使用旅程图为痴呆症患者的工作人员、家庭成员和盟友提供支持,使他们在护理过渡期间能够以不同的方式进行思考和行动:护理想象力的好处和局限性。
Dementia (London). 2022 Aug;21(6):1873-1889. doi: 10.1177/14713012221097237. Epub 2022 Jun 7.
3
Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia.
自由存在:基于艺术的关系关怀在一个充满活力的痴呆症社区中的体验。
Dementia (London). 2022 Jan;21(1):61-76. doi: 10.1177/14713012211027016. Epub 2021 Jun 24.
4
Towards an increased understanding of reminiscence therapy for people with dementia: A narrative analysis.为了更深入地了解针对痴呆症患者的回忆疗法:一项叙事分析。
Dementia (London). 2021 May;20(4):1375-1407. doi: 10.1177/1471301220941275. Epub 2020 Aug 8.
5
Battle, Journey, Imprisonment and Burden: patterns of metaphor use in blogs about living with advanced cancer.战斗、旅程、监禁和负担:晚期癌症患者博客中隐喻使用模式。
BMC Palliat Care. 2020 Apr 25;19(1):59. doi: 10.1186/s12904-020-00557-6.
6
Broadening the debate on creativity and dementia: A critical approach.拓展关于创造力与痴呆症的辩论:一种批判性方法。
Dementia (London). 2019 Oct-Nov;18(7-8):2799-2820. doi: 10.1177/1471301218760906. Epub 2018 Apr 9.
7
Alzheimer's Disease Metaphors as Mirror and Lens to the Stigma of Dementia.作为痴呆症污名化的镜子和透镜的阿尔茨海默病隐喻
Lit Med. 2017;35(1):71-97. doi: 10.1353/lm.2017.0003.
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