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两个拉丁裔群体对阿尔茨海默病的认知与态度:一项定性研究。

Knowledge and Attitudes of two Latino Groups about Alzheimer Disease: a Qualitative Study.

作者信息

Cabrera Laura Y, Kelly P, Vega I E

机构信息

Department of Engineering Science and Mechanics, Center for Neural Engineering, College of Engineering, Pennsylvania State University, W-316 Millennium Science Complex, University Park, PA, 16802, USA.

Rock Ethics Institute and Huck Institute of Life Sciences, Pennsylvania State University, University Park, PA, USA.

出版信息

J Cross Cult Gerontol. 2021 Sep;36(3):265-284. doi: 10.1007/s10823-021-09432-0. Epub 2021 Jul 1.

DOI:10.1007/s10823-021-09432-0
PMID:34196838
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8421275/
Abstract

Clustering Latinos under a single group in Alzheimer Disease (AD) research, neglects, among other things cultural and environmental differences. To address this, we examine knowledge and attitudes about AD among two Latino groups. We held 5 focus groups and 2 interviews all in Spanish with Mexicans and Puerto Ricans between 40 and 60 years old living in the Grand Rapids area in Michigan. Using content analysis of the discussions, we identified themes related to knowledge, attitudes and concerns about AD and caregiving. A total of 20 Mexicans and 9 Puerto Ricans participated. Improving knowledge and awareness, barriers and home-based family care were important themes in both Latino groups. Puerto Rican groups raised more concerns about the disease, whereas lack of knowledge was a key theme among Mexican participants. The exploratory study is a first step in promoting research that is attentive to the commonalities and differences of Latino groups and in continuing efforts to enhance health literacy among these groups.

摘要

在阿尔茨海默病(AD)研究中将拉丁裔归为单一群体,忽视了文化和环境差异等诸多因素。为解决这一问题,我们调查了两个拉丁裔群体对AD的认知和态度。我们用西班牙语对居住在密歇根州大急流城地区、年龄在40至60岁之间的墨西哥人和波多黎各人进行了5次焦点小组讨论和2次访谈。通过对讨论内容的分析,我们确定了与AD及护理相关的知识、态度和担忧等主题。共有20名墨西哥人和9名波多黎各人参与。提高认知和意识、障碍以及家庭护理是两个拉丁裔群体的重要主题。波多黎各群体对该疾病更为担忧,而缺乏认知是墨西哥参与者中的关键主题。这项探索性研究是推动关注拉丁裔群体共性与差异的研究以及持续提高这些群体健康素养的第一步。

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本文引用的文献

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Together We Make the Difference: National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research.携手合作,共创差异:阿尔茨海默病及相关痴呆症临床研究招募与参与的国家策略。
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