Haneef Romana, Schmidt Jürgen, Gallay Anne, Devleesschauwer Brecht, Grant Ian, Rommel Alexander, Wyper Grant Ma, Van Oyen Herman, Hilderink Henk, Ziese Thomas, Newton John
Department of Non-Communicable Diseases and Injuries, Santé Publique France, 12 rue du Val d'Osne, 94415, Saint-Maurice Cedex, France.
Health Improvement, Public Health England, London, UK.
Arch Public Health. 2021 Jul 7;79(1):126. doi: 10.1186/s13690-021-00652-x.
The InfAct (Information for Action) project is a European Commission Joint Action on Health Information which has promoted the potential role of burden of disease (BoD) approaches to improve the current European Union-Health Information System (EU-HIS). It has done so by raising awareness of the concept, the methods used to calculate estimates and their potential implications and uses in policymaking. The BoD approach is a systematic and scientific effort to quantify and compare the magnitude of health loss due to different diseases, injuries, and risk factors with estimates produced by demographic characteristics and geographies for specific points in time. Not all countries have the resources to undertake such work, and may therefore start with a more restricted objective, e.g., a limited number of diseases, or the use of simple measures of population health such as disease prevalence or life expectancy. The main objective to develop these recommendations was to facilitate those countries planning to start a national burden of disease study.
These recommendations could be considered as minimum requirements for those countries planning to start a BoD study and includes following elements: (1) Define the objectives of a burden of disease study within the context of your country, (2) Identify, communicate and secure the benefits of performing national burden of disease studies, (3) Secure access to the minimum required data sources, (4) Ensure the minimum required capacity and capability is available to carry out burden of disease study, (5) Establish a clear governance structure for the burden of disease study and stakeholder engagement/involvement, (6) Choose the appropriate methodological approaches and (7) Knowledge translation. These were guided by the results from our survey performed to identify the needs of European countries for BoD studies, a narrative overview from four European countries (Belgium, Germany, The Netherlands and Scotland) and the summary of a comparative study of country health profiles with national health statistics.
These recommendations as minimum requirements would facilitate efforts by those European countries who intend to perform national BoD studies.
InfAct（行动信息）项目是欧盟委员会关于健康信息的联合行动，该行动促进了疾病负担方法在改善当前欧盟健康信息系统（EU - HIS）方面的潜在作用。它通过提高对该概念、用于计算估计值的方法及其在政策制定中的潜在影响和用途的认识来实现这一目标。疾病负担方法是一项系统且科学的工作，旨在将不同疾病、伤害和风险因素导致的健康损失程度与特定时间点按人口特征和地域得出的估计值进行量化和比较。并非所有国家都有资源开展此类工作，因此可能会从更有限的目标入手，例如针对有限数量的疾病，或者使用诸如疾病患病率或预期寿命等简单的人群健康指标。制定这些建议的主要目的是帮助那些计划开展国家疾病负担研究的国家。
这些建议可被视为计划开展疾病负担研究的国家的最低要求，包括以下要素：（1）在本国背景下明确疾病负担研究的目标；（2）识别、宣传并确保开展国家疾病负担研究的益处；（3）确保能够获取最低限度所需的数据源；（4）确保具备开展疾病负担研究所需的最低限度能力；（5）为疾病负担研究以及利益相关者的参与建立清晰的治理结构；（6）选择合适的方法学途径；（7）知识转化。这些建议以我们为确定欧洲国家对疾病负担研究的需求而进行的调查结果、四个欧洲国家（比利时、德国、荷兰和苏格兰）的叙述性概述以及国家健康概况与国家健康统计数据比较研究的总结为指导。
这些作为最低要求的建议将有助于那些打算开展国家疾病负担研究的欧洲国家做出努力。
