AIM Lab, Stanford School of Medicine, Department of Continuing Education, University of Oxford, UK.
Northern Ireland Clinical Trials Unit, Belfast Health and Social Care Trust, Belfast, UK; Northern Ireland Methodology Hub, Centre for Public Health, Queen's University Belfast, Belfast, UK.
Patient Educ Couns. 2022 Apr;105(4):1041-1047. doi: 10.1016/j.pec.2021.07.021. Epub 2021 Jul 19.
The public and patients can be powerful sensors for shaping and powering healthcare research. They are joining research teams as investigators and collaborators to co-produce evidence for the practical use of interventions in clinical practice. While clinicians and researchers are encouraged by funders and policymakers to involve the public and patients as partners in research, knowledge on what involvement consists of is limited, and the continuum between consultation, collaboration and co-production are not clearly defined. In this article, we explore Patient and Public Involvement (PPI) and introduce greater involvement through research co-production. Co-production describes ways that research partnership can work through public and patient involvement and we outline the similarities of co-production to "The Commons", a strategy utilized by economists to increase effective use of resources. We share examples of how public and patient involvement have used co-production, to demonstrate financial and health benefits. We then outline practical challenges at system, social and cultural levels and consider how others have worked to resolve them.
公众和患者可以成为塑造和推动医疗保健研究的有力推动者。他们作为调查员和合作者加入研究团队，共同为干预措施在临床实践中的实际应用提供证据。虽然临床医生和研究人员受到资助者和政策制定者的鼓励，让公众和患者作为研究伙伴参与其中，但对于参与的内容知之甚少，而且咨询、合作和共同创作之间的连续体也没有明确界定。在本文中，我们探讨了患者和公众参与（PPI），并通过研究共同创作引入了更大的参与。共同创作描述了通过公众和患者参与来开展研究合作的方式，我们还概述了共同创作与“公有领域”的相似之处，“公有领域”是经济学家用来提高资源有效利用的一种策略。我们分享了公众和患者参与共同创作的例子，以展示其在财务和健康方面的益处。然后，我们概述了系统、社会和文化层面的实际挑战，并考虑了其他人如何努力解决这些问题。
