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开发一款用于脑震荡的移动应用程序,以助力患者自主管理并控制症状。

Developing a Mobile App for Concussion to aid Patient Empowerment and Symptom Management.

作者信息

Newton Janna, Wuerch Emily, Thomas Noel, Seo Boogyung, Lang Eddy, Pohar Manhas Kiran

机构信息

Emergency Medicine, University of Calgary, Calgary, CAN.

Neurosciences, Alberta Health Services, Calgary, CAN.

出版信息

Cureus. 2021 Jun 27;13(6):e15972. doi: 10.7759/cureus.15972. eCollection 2021 Jun.

Abstract

Despite the high prevalence of concussions each year in Canada, access to consistent and science-based information on how to self-manage these injuries remains a significant hurdle for many patients. Currently, available mobile applications (apps) focus mainly on supporting patients with sports-related concussions, although falls account for more traumatic brain injuries (TBI) than sports-related TBI's in Alberta. Patients from a broader demographic may be limited from accessing information on how to correctly manage and track their symptoms as they feel that currently available resources are not applicable to them. Through collaboration between health system leaders, expert consultations, patients, and university students, a mobile app was designed as a platform to help patients manage and track symptoms at home, as well as to clarify misleading information and misconceptions surrounding injury. The team engaged numerous physicians, patient advisors, and health system leaders to improve upon the features of currently-existing concussion apps such as symptom tracking, insight into concussion, and strategies for returning to work/school that are more inclusive to adult, non-sports related injuries. We believe that these features will advance recovery by alleviating the burden of uncertainty and confusion for patients and their family members.

摘要

尽管加拿大每年脑震荡的发病率很高,但对于许多患者来说,获取关于如何自我管理这些损伤的一致且基于科学的信息仍然是一个重大障碍。目前,现有的移动应用程序(应用)主要侧重于为患有与运动相关脑震荡的患者提供支持,尽管在艾伯塔省,跌倒导致的创伤性脑损伤(TBI)比与运动相关的TBI更多。来自更广泛人群的患者可能无法获取有关如何正确管理和跟踪其症状的信息,因为他们认为现有的资源不适用于他们。通过卫生系统领导者、专家咨询、患者和大学生之间的合作,设计了一款移动应用程序作为一个平台,以帮助患者在家中管理和跟踪症状,并澄清围绕损伤的误导性信息和误解。该团队与众多医生、患者顾问和卫生系统领导者合作,改进现有脑震荡应用程序的功能,如症状跟踪、对脑震荡的洞察以及重返工作/学校的策略,使其对成人、非运动相关损伤更具包容性。我们相信,这些功能将通过减轻患者及其家庭成员的不确定性和困惑负担来促进康复。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3219/8315863/74aa5c0ab12c/cureus-0013-00000015972-i01.jpg

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