Naghdali Hasti, Mashhourinejad Parshan, Abdulai Abdul-Fatawu
School of Nursing, The University of British Columbia, Vancouver, British Columbia, Canada.
Faculty of Medicine, The University of British Columbia, Vancouver, British Columbia, Canada.
BMJ Open. 2025 Sep 1;15(9):e092542. doi: 10.1136/bmjopen-2024-092542.
To engage individuals with lived experiences of dyspareunia in a co-design process to identify strategies for reducing stigma on digital health platforms.
Three virtual co-design workshops were conducted with 14 participants with lived experiences of dyspareunia. Data collection occurred in two phases. In phase 1, participants created individual prototypes of stigma-alleviating website designs. In phase 2, participants came together to collaboratively create a final design prototype using the individual designs as a guide. Participants then explained their reasons for selecting specific design elements and how these choices addressed stigma. The co-design workshops were recorded, transcribed verbatim and then analysed thematically.
The data revealed four overarching themes for developing destigmatising online platforms. These include providing extensive information on dyspareunia, designing for inclusivity, protecting users' identities, and offering interactive features to support information access and community connection.
This study offers patient-led strategies for mitigating stigma through online platforms. The findings may inform the design of digital health resources for individuals seeking sexual health services online, particularly those from stigmatised populations who use web-based platforms to navigate or supplement their healthcare needs.
让有性交疼痛亲身经历的人参与共同设计过程，以确定在数字健康平台上减少污名化的策略。
与14名有性交疼痛亲身经历的参与者举办了三场虚拟共同设计研讨会。数据收集分两个阶段进行。在第一阶段，参与者创建了减轻污名化网站设计的个人原型。在第二阶段，参与者聚集在一起，以个人设计为指导，共同创建最终的设计原型。参与者随后解释了他们选择特定设计元素的原因，以及这些选择如何解决污名化问题。共同设计研讨会进行了录音，逐字转录，然后进行主题分析。
数据揭示了开发消除污名化在线平台的四个总体主题。这些主题包括提供关于性交疼痛的广泛信息、设计包容性、保护用户身份，以及提供交互式功能以支持信息获取和社区联系。
本研究提供了由患者主导的通过在线平台减轻污名化的策略。研究结果可能为在线寻求性健康服务的个人，特别是那些来自受污名化群体、利用网络平台满足或补充其医疗保健需求的人设计数字健康资源提供参考。
