van Leersum Catharina M, Bults Marloes, Sloof Michelle, Pouwe Fabiënne, van Manen Jeannette G, Konijnendijk Annemieke A J
Universiteit Twente, Enschede, Nederland.
Saxion Hogeschool, Enschede, Nederland.
TSG. 2021;99(3):110-119. doi: 10.1007/s12508-021-00313-y. Epub 2021 Aug 3.
The aim was to gain insight in the preferences of people with type 2 diabetes mellitus regarding the moments and methods of patient participation in the development and application of eHealth, and which factors influence this.
A digital questionnaire with both closed and open questions was distributed via various online platforms and the newsletter of the Diabetes Association in the Netherlands. Information was collected on: 1) willingness to participate; 2) preferences about the method of participation; 3) influencing factors on participation, including motivation, competence, resources, social influences, and outcome expectations; 4) background characteristics.
160 questionnaires were analysed. More than three quarter of the respondents intend to be involved in patient participation. Most respondents prefer solo participation methods over group participation, respectively 93% and 46%. Half of the respondents feel that they have sufficient knowledge to participate, and 40% feels that they can provide valuable input. As compensation for participation, participants prefer to use new technologies for free.
As people with diabetes type 2 differ in their preferences for moments and methods of participation, it is recommended to offer different methods of participation and types of compensation in the process from development to application of eHealth.
旨在深入了解2型糖尿病患者对于参与电子健康发展和应用的时机及方式的偏好，以及哪些因素会对此产生影响。
通过荷兰糖尿病协会的各种在线平台和时事通讯分发了一份包含封闭式和开放式问题的数字问卷。收集的信息包括：1）参与意愿；2）对参与方式的偏好；3）参与的影响因素，包括动机、能力、资源、社会影响和结果期望；4）背景特征。
分析了160份问卷。超过四分之三的受访者打算参与患者参与活动。大多数受访者更喜欢单独参与方式而非团体参与，分别为93%和46%。一半的受访者认为他们有足够的知识参与，40%的受访者认为他们可以提供有价值的意见。作为参与的补偿，参与者更喜欢免费使用新技术。
由于2型糖尿病患者在参与时机和方式的偏好上存在差异，建议在电子健康从开发到应用的过程中提供不同的参与方式和补偿类型。
