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在大型全国性电子健康记录数据集创建儿童及其父母的关联队列。

Creation of a linked cohort of children and their parents in a large, national electronic health record dataset.

机构信息

Oregon Health & Science University.

OCHIN, Inc., Portland, OR.

出版信息

Medicine (Baltimore). 2021 Aug 13;100(32):e26950. doi: 10.1097/MD.0000000000026950.

Abstract

To examine which parental health care and health factors are most strongly associated with a child's receipt of recommended care we must be able to link children to their parents in electronic health record data. Yet, there is not an easy way to link these data.To identify a national cohort of children that link to at least one parent in the same electronic health record dataset and describe their demographics.Methodology to link parents and children in electronic health records and descriptive sociodemographic data.Children with at least one encounter with a primary care clinician between Januray 1, 2007 and December 12, 2018 to a community health center in the OCHIN national network. We identified parents of these children who also had at least one encounter to a community health center in the network using emergency contact and guarantor record fields.A total of 227,552 children had parents with a linkable patient record. After exclusions, our final cohort included 213,513 distinct children with either one or two parent-links. 82% of children linked to a mother only, 14% linked to a father only, and 4% linked to both a mother and a father. Most families consisted of only one linked child (61%).We were able to link 33% of children to a parent in electronic health record data from a large network of community health centers across the United States. Further analyses utilizing these linkages will allow examination of the multi-level factors that impact a child's receipt of recommended health care.

摘要

为了研究哪些父母的医疗保健和健康因素与孩子接受推荐的医疗保健最密切相关,我们必须能够在电子健康记录数据中将孩子与其父母联系起来。然而,没有一种简单的方法可以将这些数据联系起来。

为了确定一个能够与同一份电子健康记录数据集中的至少一位家长联系的全国儿童队列,并描述他们的人口统计学特征。

我们使用紧急联系人记录和担保人记录字段,在 OCHIN 国家网络中的社区卫生中心识别这些儿童的父母,他们也至少有一次与网络中的社区卫生中心接触。共有 227552 名儿童的父母有可链接的患者记录。排除后,我们的最终队列包括 213513 名具有一个或两个父母链接的独特儿童。82%的儿童仅与母亲链接,14%的儿童仅与父亲链接,4%的儿童与母亲和父亲都链接。大多数家庭只有一个链接的孩子(61%)。

我们能够将 33%的儿童与其父母在电子健康记录数据中联系起来,这些数据来自美国各地的大型社区卫生中心网络。进一步利用这些联系进行的分析将允许检查影响儿童接受推荐医疗保健的多层次因素。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ae15/8360479/3deb15261923/medi-100-e26950-g001.jpg

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