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重症肌无力与远程医疗:COVID-19 大流行带来的启示。

Myasthenia gravis and telemedicine: a lesson from COVID-19 pandemic.

机构信息

I Division of Neurology and Neurophysiopathology, Department of Medical, Surgical, Neurological, Metabolic and Aging Sciences, University of Campania "Luigi Vanvitelli", Naples, Italy.

Department of Neuroscience, Psychology, Drug Research and Child Health (NEUROFARBA), University of Florence, Florence, Italy.

出版信息

Neurol Sci. 2021 Dec;42(12):4889-4892. doi: 10.1007/s10072-021-05566-8. Epub 2021 Aug 26.

DOI:10.1007/s10072-021-05566-8
PMID:34436726
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8390022/
Abstract

COVID-19 pandemic has induced an urgent reorganization of the healthcare system to ensure continuity of care for patients affected by chronic neurological diseases including myasthenia gravis (MG). Due to the fluctuating nature of the disease, early detection of disease worsening, adverse events, and possibly life-threatening complications is mandatory. This work analyzes the main unresolved issues in the management of the myasthenic patient, the possibilities offered so far by digital technologies, and proposes an online evaluation protocol based on 4 simple tests to improve MG management. Telemedicine and Digital Technology might help neurologists in the clinical decision-making process of MG management, avoiding unnecessary in presence consultations and allowing a rational use of the time and space reduced by the pandemic.

摘要

COVID-19 大流行促使医疗体系进行紧急重组,以确保受慢性神经疾病(包括重症肌无力)影响的患者的医疗服务能够持续进行。由于疾病具有波动性,因此必须及早发现疾病恶化、不良事件以及可能危及生命的并发症。本研究分析了重症肌无力患者管理中尚未解决的主要问题、数字技术迄今提供的可能性,并提出了一种基于 4 项简单测试的在线评估方案,以改善重症肌无力的管理。远程医疗和数字技术可以帮助神经病学家在重症肌无力管理的临床决策过程中做出决策,避免不必要的当面会诊,并合理利用大流行减少的时间和空间。

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本文引用的文献

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Knowledge and perceptions of the COVID-19 pandemic among patients with myasthenia gravis.新冠疫情期间重症肌无力患者对该疾病的认知。
Muscle Nerve. 2021 Mar;63(3):357-364. doi: 10.1002/mus.27130. Epub 2020 Dec 20.
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International Consensus Guidance for Management of Myasthenia Gravis: 2020 Update.国际重症肌无力管理共识指南:2020 年更新版。
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Myasthenia Gravis and COVID-19: Clinical Characteristics and Outcomes.重症肌无力与新型冠状病毒肺炎:临床特征与转归
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Management of patients with generalised myasthenia gravis and COVID-19: four case reports.全身型重症肌无力合并新型冠状病毒肺炎患者的管理:4例病例报告
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COVID-19 in Refractory Myasthenia Gravis- A Case Report of Successful Outcome.COVID-19 合并难治性重症肌无力:成功治疗 1 例报告
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