University of Skövde, Sweden.
Örebro University School of Business, Sweden.
Health Informatics J. 2021 Jul-Sep;27(3):14604582211035817. doi: 10.1177/14604582211035817.
Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient's preferences for receiving bad news, including through PAEHRs. Little is also known about the characteristics of the patients who prefer to receive bad news through the PAEHR in terms of, for example medical diagnosis, age and educational level. This study, based on a national patient survey in Sweden ( = 2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women ( = 0.001), and the same goes for those who are not working/have worked in healthcare ( = 0.007). An effect of disease groups was also found, showing that diabetes patients in particular, want to receive bad news through the PAEHR.
尽管患者可访问的电子健康记录(PAEHR)在多个国家已经存在多年,但仍缺乏研究调查患者对通过 PAEHR 接收坏消息的偏好,包括通过 PAEHR 接收坏消息。对于更喜欢通过 PAEHR 接收坏消息的患者,例如在医疗诊断、年龄和教育水平方面的特征,也知之甚少。这项基于瑞典全国患者调查(n=2587)的研究调查了这一点。结果表明,一般来说,通过阅读 PAEHR 接收坏消息仍然是最不受欢迎的选择之一。此外,与女性相比,更多的男性希望在 PAEHR 中接收坏消息(p=0.001),而那些不在医疗保健行业工作/曾在医疗保健行业工作的人也是如此(p=0.007)。还发现了疾病组的影响,表明糖尿病患者尤其希望通过 PAEHR 接收坏消息。