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基于网络的儿童癌症人群营养网站的独特特征:描述性研究。

Unique Features of a Web-Based Nutrition Website for Childhood Cancer Populations: Descriptive Study.

机构信息

Department of Pediatrics Research, The University of Texas MD Anderson Cancer Center, Houston, TX, United States.

Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Houston, TX, United States.

出版信息

J Med Internet Res. 2021 Sep 13;23(9):e24515. doi: 10.2196/24515.

Abstract

BACKGROUND

Children with cancer experience a myriad of nutritional challenges that impact their nutrition status during treatment and into survivorship. Growing evidence suggests that weight at diagnosis impacts cancer outcomes, but provider guidance on nutrition and diet during treatment varies. Nutrition literacy and culinary resources may help mitigate some common nutritional problems; however, many patients may face barriers to accessing in-person classes. Along with dietitian-led clinical interventions, web-based resources such as the newly updated electronic cookbook (e-cookbook) created by The University of Texas MD Anderson Cancer Center, @TheTable, may facilitate access to nutrition and culinary education during treatment and into survivorship.

OBJECTIVE

We sought to define and describe the features and content of the @TheTable e-cookbook and compare it with analogous resources for a lay audience of patients with childhood cancer and childhood cancer survivors as well as their families.

METHODS

We evaluated freely available web-based resources via a popular online search engine (ie, Google). These searches yielded three web-based resources analogous to @TheTable: the American Institute for Cancer Research's Healthy Recipes, The Children's Hospital of San Antonio's Culinary Health Education for Families Recipe for Life, and Ann Ogden Gaffney and Fred Hutchinson Cancer Research Center's Cook for Your Life. These sites were analyzed for the following: number of recipes, search functionality, child or family focus, cancer focus, specific dietary guidance, videos or other media, and miscellaneous unique features.

RESULTS

Cook for Your Life and Culinary Health Education for Families Recipe for Life were the most comparable to @TheTable with respect to cancer focus and family focus, respectively. Healthy Recipes is the least user-friendly, with few search options and no didactic videos.

CONCLUSIONS

The @TheTable e-cookbook is unique in its offering of child- and family-focused content centered on the cancer and survivorship experience.

摘要

背景

癌症患儿在治疗期间及生存期间会经历各种营养挑战,影响其营养状况。越来越多的证据表明,诊断时的体重会影响癌症的结果,但在治疗期间,关于营养和饮食的建议因提供者而异。营养素养和烹饪资源可能有助于缓解一些常见的营养问题;然而,许多患者可能面临获取面授课程的障碍。除了营养师主导的临床干预外,基于网络的资源,如德克萨斯大学 MD 安德森癌症中心创建的新更新的电子食谱(e-cookbook)@TheTable,也可以在治疗期间及生存期间为患者及其家属提供营养和烹饪教育。

目的

我们旨在定义和描述@TheTable e-cookbook 的功能和内容,并将其与针对儿童癌症患者和儿童癌症幸存者及其家属的类似资源进行比较。

方法

我们通过一个流行的在线搜索引擎(即 Google)评估了免费的在线资源。这些搜索结果产生了三个类似于@TheTable 的在线资源:美国癌症研究所的健康食谱、圣安东尼奥儿童医院的家庭烹饪健康教育食谱、以及 Ann Ogden Gaffney 和弗雷德哈钦森癌症研究中心的为生命烹饪。我们对这些网站进行了以下分析:食谱数量、搜索功能、儿童或家庭焦点、癌症焦点、具体饮食指导、视频或其他媒体以及其他独特功能。

结果

就癌症焦点和家庭焦点而言,Cook for Your Life 和 Culinary Health Education for Families Recipe for Life 与@TheTable 最为相似。健康食谱是最不用户友好的,搜索选项很少,也没有教学视频。

结论

@TheTable e-cookbook 提供以儿童和家庭为中心的内容,专注于癌症和生存体验,这使其具有独特性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0769/8477295/f064cdc6c394/jmir_v23i9e24515_fig1.jpg

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