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香港癫痫患者的就业情况。

Employment among people with epilepsy in Hong Kong.

作者信息

Chan M H Holy, Leung William C Y, Lou W Q Vivian, Lo Cheuk Nam Rachel, Chang Richard Shek-Kwan

机构信息

Li Ka Shing Faculty of Medicine, University of Hong Kong, Hong Kong Special Administrative Region.

Division of Neurology, Department of Medicine, Queen Mary Hospital, University of Hong Kong, Hong Kong Special Administrative Region.

出版信息

Epilepsy Behav. 2021 Oct 5;124:108329. doi: 10.1016/j.yebeh.2021.108329.

Abstract

BACKGROUND

People with epilepsy (PWE) face difficulties in employment. Hong Kong depends heavily on tertiary industry and enjoys a low unemployment rate. However, there have been rare reports on employment of PWE in Hong Kong. We aimed at (1) investigating the employment status among PWE; (2) correlating demographic and clinical factors with employment status of PWE; and (3) describing the self-perceived impact of epilepsy on employment and their correlations with employment status.

METHOD

This was a single center cross-sectional study conducted in 2019. Adult with epilepsy but without intellectual disability of year age 16-65 were recruited. Homemakers and retired persons were excluded. A questionnaire with two parts was given to each patient. The first part focused on objective data about employment. The second part focused on self-perception on the impact of epilepsy on employment. Responders expressed their opinions in 5-point Likert scale. Clinical data were retrieved from the computerized medical record system for interpretation.

RESULTS

A total of 138 PWE were recruited. Unemployment rate among the PWE was 33%, which was much higher than the general population. Low education levels, drug-resistant epilepsy, psychiatric comorbidities, and high Charlson Comorbidity Index were correlated to unemployment in PWE. Unemployed respondents significantly more tend to regard that lack of education, stigma of epilepsy, and seizure frequency were main hurdles in employment.

CONCLUSIONS

Unemployment is a severe social problem among PWE in Hong Kong. Various objective clinical and demographic factors correlated with unemployment. Work beliefs of a patient may also correlate with the employment status.

摘要

背景

癫痫患者在就业方面面临困难。香港严重依赖第三产业,失业率较低。然而,香港关于癫痫患者就业的报道很少。我们旨在:(1)调查癫痫患者的就业状况;(2)将人口统计学和临床因素与癫痫患者的就业状况相关联;(3)描述癫痫对就业的自我认知影响及其与就业状况的相关性。

方法

这是一项于2019年进行的单中心横断面研究。招募年龄在16 - 65岁、患有癫痫但无智力残疾的成年人。排除家庭主妇和退休人员。给每位患者发放一份包含两部分的问卷。第一部分聚焦于就业的客观数据。第二部分聚焦于对癫痫对就业影响的自我认知。应答者用5级李克特量表表达他们的意见。从计算机化病历系统中检索临床数据进行分析。

结果

共招募了138名癫痫患者。癫痫患者的失业率为33%,远高于普通人群。低教育水平、耐药性癫痫、精神共病和高查尔森合并症指数与癫痫患者的失业相关。失业的应答者明显更倾向于认为缺乏教育、癫痫的污名化和发作频率是就业的主要障碍。

结论

失业是香港癫痫患者中一个严重的社会问题。各种客观的临床和人口统计学因素与失业相关。患者的工作信念也可能与就业状况相关。

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