Abonie Ulric S, Seves Bregje L, Hoekstra Femke, Hoekstra Trynke, van der Woude Lucas H V, Dekker Rienk, Hettinga Florentina J
Department of Physiotherapy and Rehabilitation Sciences, University of Health and Allied Sciences, Ho, Ghana (USA).
School of Sport, Rehabilitation, and Exercise Science, University of Essex, Colchester, UK (USA).
Int J MS Care. 2021 Sep-Oct;23(5):207-212. doi: 10.7224/1537-2073.2020-047. Epub 2021 Feb 25.
Activity pacing is a behavioral strategy for coping with fatigue, optimizing physical activity (PA) levels, and achieving a paced approach to lifestyle and sustainable self-regulated exercise practice to optimize health and well-being. Yet little is known about how activity pacing affects PA and health-related quality of life (HRQOL) while controlling for fatigue and demographic characteristics over time in adults with multiple sclerosis (MS). This study examined the natural use of activity pacing and how it is associated with PA and HRQOL over time in adults with MS.
Sixty-eight adults with MS (mean ± SD age, 45.2 ± 10.9 years) completed questionnaires on their activity pacing, fatigue, PA, and HRQOL 14, 33, and 52 weeks after rehabilitation. Associations between the variables were examined using multilevel models.
No associations were found between activity pacing and PA (β = -0.01, = .89) or between activity pacing and HRQOL (β = -0.15, = .09).
This study provides an initial understanding of how activity pacing relates to PA and HRQOL in people with MS over time and indicates that there is no clear strategy among adults with MS that is successful in improving PA and HRQOL in the short or long term. Persons with MS may benefit from goal-directed activity pacing interventions to improve longitudinal engagement in PA, and the present study provides a foundation for further intervention development.
活动节奏安排是一种应对疲劳、优化身体活动（PA）水平、实现有节奏的生活方式以及可持续的自我调节运动实践以优化健康和幸福感的行为策略。然而，在患有多发性硬化症（MS）的成年人中，随着时间的推移，在控制疲劳和人口统计学特征的情况下，活动节奏安排如何影响PA和健康相关生活质量（HRQOL），目前所知甚少。本研究调查了MS成年人中活动节奏安排的自然使用情况以及随着时间的推移它与PA和HRQOL的关联。
68名患有MS的成年人（平均年龄±标准差，45.2±10.9岁）在康复后14周、33周和52周完成了关于他们的活动节奏安排、疲劳、PA和HRQOL的问卷调查。使用多层次模型检查变量之间的关联。
未发现活动节奏安排与PA之间存在关联（β = -0.01，P = 0.89），也未发现活动节奏安排与HRQOL之间存在关联（β = -0.15，P = 0.09）。
本研究初步了解了随着时间的推移活动节奏安排与MS患者的PA和HRQOL之间的关系，并表明在患有MS的成年人中，没有明确的策略能在短期或长期内成功改善PA和HRQOL。MS患者可能会从目标导向的活动节奏安排干预中受益，以提高PA的长期参与度，本研究为进一步的干预发展提供了基础。
