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脸书招募晚期癌症患儿及其父母:基于网络的儿科姑息治疗干预研究的经验教训。

Facebook Recruitment for Children with Advanced Cancer and Their Parents: Lessons from a Web-based Pediatric Palliative Intervention Study.

作者信息

Cho Eunji, Gilmer Mary Jo, Friedman Debra L, Hendricks-Ferguson Verna L, Hinds Pamela S, Akard Terrah Foster

机构信息

School of Nursing, Vanderbilt University, Nashville, Tennessee, USA.

School of Medicine, Vanderbilt University, Nashville, Tennessee, USA.

出版信息

Prog Palliat Care. 2021;29(5):264-271. doi: 10.1080/09699260.2021.1898077. Epub 2021 Mar 29.

Abstract

Participant recruitment for pediatric palliative intervention studies is a chronic challenge for researchers. Digital recruitment strategies, or digital technology-assisted recruitment methods used to remotely reach and enroll research subjects, can help address these recruitment challenges for pediatric palliative care clinical trials. This study (a) describes Facebook recruitment procedures targeting children with cancer and their parents for a pediatric palliative intervention randomized clinical trial, (b) reports recruitment results, and (c) discusses successful strategies to recruit pediatric populations via Facebook advertisements. Researchers used Facebook advertisements to recruit children with advanced cancer (aged 7 to 17 years) for a web-based legacy intervention. Between years 2015 and 2018, our research team enrolled 150 child-parent dyads ( 300) to participate in the web-based legacy program. Results suggest that Facebook advertisements can be a successful tool to access and recruit pediatric populations with life-threatening conditions. Further research is needed to determine how innovative social-media recruitment strategies could be used in other populations of patients with serious illnesses and their caregivers to further advance the science in palliative care.

摘要

对于研究人员来说,招募儿童姑息治疗干预研究的参与者是一项长期挑战。数字招募策略,即用于远程接触和招募研究对象的数字技术辅助招募方法,有助于应对儿科姑息治疗临床试验中的这些招募挑战。本研究(a)描述了针对患有癌症的儿童及其父母进行儿科姑息治疗干预随机临床试验的Facebook招募程序,(b)报告招募结果,以及(c)讨论通过Facebook广告招募儿科人群的成功策略。研究人员使用Facebook广告招募患有晚期癌症(7至17岁)的儿童参加基于网络的遗产干预。在2015年至2018年期间,我们的研究团队招募了150对儿童-家长二元组(300人)参与基于网络的遗产项目。结果表明,Facebook广告可以成为接触和招募患有危及生命疾病的儿科人群的成功工具。需要进一步研究以确定创新的社交媒体招募策略如何应用于其他患有严重疾病的患者群体及其护理人员,以进一步推动姑息治疗科学的发展。

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