Akard Terrah Foster, Wray Sarah, Gilmer Mary Jo
Author Affiliation: School of Nursing, Vanderbilt University, Nashville, Tennessee.
Cancer Nurs. 2015 Mar-Apr;38(2):155-61. doi: 10.1097/NCC.0000000000000146.
Studies involving samples of children with life-threatening illnesses and their families face significant challenges, including inadequate sample sizes and limited diversity. Social media recruitment and Web-based research methods may help address such challenges yet have not been explored in pediatric cancer populations.
This study examined the feasibility of using Facebook advertisements to recruit parent caregivers of children and teenagers with cancer. We also explored the feasibility of Web-based video recording in pediatric palliative care populations by surveying parents of children with cancer regarding (a) their preferences for research methods and (b) technological capabilities of their computers and phones.
Facebook's paid advertising program was used to recruit parent caregivers of children currently living with cancer to complete an electronic survey about research preferences and technological capabilities.
The advertising campaign generated 3 897 981 impressions, which resulted in 1050 clicks at a total cost of $1129.88. Of 284 screened individuals, 106 were eligible. Forty-five caregivers of children with cancer completed the entire electronic survey. Parents preferred and had technological capabilities for Web-based and electronic research methods. Participant survey responses are reported.
Facebook was a useful, cost-effective method to recruit a diverse sample of parent caregivers of children with cancer. Web-based video recording and data collection may be feasible and desirable in samples of children with cancer and their families.
Web-based methods (eg, Facebook, Skype) may enhance communication and access between nurses and pediatric oncology patients and their families.
涉及患有危及生命疾病的儿童及其家庭样本的研究面临重大挑战,包括样本量不足和多样性有限。社交媒体招募和基于网络的研究方法可能有助于应对这些挑战,但尚未在儿科癌症人群中进行探索。
本研究探讨了使用脸书广告招募癌症患儿和青少年的家长照顾者的可行性。我们还通过调查癌症患儿的家长关于(a)他们对研究方法的偏好以及(b)他们电脑和手机的技术能力,探讨了在儿科姑息治疗人群中进行基于网络的视频记录的可行性。
使用脸书的付费广告计划招募目前患有癌症儿童的家长照顾者,以完成一项关于研究偏好和技术能力的电子调查。
广告活动产生了3897981次展示,导致1050次点击,总成本为1129.88美元。在284名筛选出的个体中,106名符合条件。45名癌症患儿的照顾者完成了整个电子调查。家长们更喜欢基于网络和电子的研究方法,并且具备相应的技术能力。报告了参与者的调查回复。
脸书是一种有用且具有成本效益的方法,可用于招募癌症患儿家长照顾者的多样化样本。在癌症患儿及其家庭的样本中,基于网络的视频记录和数据收集可能是可行且可取的。
基于网络的方法(如脸书、Skype)可能会加强护士与儿科肿瘤患者及其家庭之间的沟通和联系。