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癌症生存者:存在的痛苦。

Cancer survivorship: existential suffering.

机构信息

Faculty of Health Sciences, University of Stavanger, University of Stavanger, Stavanger, Norway.

Emerita Faculty of Health Sciences, University of Stavanger, Stavanger, Norway.

出版信息

Int J Qual Stud Health Well-being. 2021 Dec;16(1):2001897. doi: 10.1080/17482631.2021.2001897.

Abstract

PURPOSE

This study aimed to explore and describe existential experiences after cancer treatment.

METHOD

An exploratory phenomenological hermeneutical design was used following in-depth interviews with 21 people.

RESULTS

The study revealed experiences of multifaceted suffering in the form of limitations in everyday life, inner struggles, and bearing the burden alone.

CONCLUSIONS

Existential suffering after cancer treatment was revealed as like being in a process of transition, in an intermediate state, as moving between suffering and enduring, and alternating between alienworld and homeworld. A new and broader professional perspective is needed to establish rehabilitation services based on multifaceted experiences of suffering. This means a shift in focus from biomedical symptoms towards understanding of existential meaning for the person.

摘要

目的

本研究旨在探索和描述癌症治疗后的存在体验。

方法

采用深度访谈的方式,对 21 人进行了探索性现象学解释学设计。

结果

研究揭示了多方面的痛苦体验,表现为日常生活的限制、内心的挣扎和独自承受负担。

结论

癌症治疗后的存在性痛苦表现为处于过渡过程中,处于中间状态,在痛苦和忍受之间移动,在异世界和家园世界之间交替。需要建立基于痛苦的多方面体验的康复服务,这需要一个新的、更广泛的专业视角。这意味着从生物医学症状转向对个人存在意义的理解。

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本文引用的文献

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Life after cancer treatment - existential experiences of longing.癌症治疗后的生活——渴望的存在体验。
Int J Qual Stud Health Well-being. 2020 Dec;15(1):1838041. doi: 10.1080/17482631.2020.1838041.
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Experiences of adult cancer survivors in transitions.成人癌症幸存者的过渡期体验。
Support Care Cancer. 2019 Aug;27(8):2977-2986. doi: 10.1007/s00520-018-4605-3. Epub 2018 Dec 26.
7
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Long-Term Cancer Survivors' Everyday Embodiment.长期癌症幸存者的日常身体体验
Health Commun. 2020 Feb;35(2):180-191. doi: 10.1080/10410236.2018.1550470. Epub 2018 Nov 22.
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Centralizing Temporality in Adolescent and Young Adult Cancer Survivorship.将时间集中于青少年和青年癌症生存者。
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