Boltong Anna, Ledwick Martin, Babb Kevin, Sutton Clare, Ugalde Anna
Cancer Information and Support Service, Cancer Council Victoria, 615 St Kilda Road, Melbourne, VIC, 3004, Australia.
School of Health Sciences, The University of Melbourne, Grattan Street, Parkville, VIC, Australia.
Support Care Cancer. 2017 Apr;25(4):1221-1228. doi: 10.1007/s00520-016-3513-7. Epub 2016 Dec 1.
The aim of this study was to develop an in-depth understanding of the rationale, experiences, evaluation and outcomes of using Cancer Information and Support (CIS) services in Australia, the UK and USA.
Semi-structured interviews were used to gather data between November 2015 and January 2016. Telephone interviews were recorded, de-identified, transcribed and thematically analysed. Ten users from each of three international CIS services (n = 30 in total) were recruited. Participants were eligible for inclusion if they had utilised the CIS in 2015 via telephone contact with a cancer nurse and identified as a patient or cancer survivor, or friend or family member of such a person.
Four major themes were derived and included a total of 25 sub-themes. Key themes included (i) drivers for access, (ii) experience of the service, (iii) impact and (iv) an adjunct to cancer treatment services.
Cancer Information and Support nurses internationally act as expert navigators, educators and compassionate communicators who 'listen between the lines' to enable callers to better understand and contextualise their situation and discuss it with their healthcare team and family and friends. Use of the service can result in reduced worry, extend support repertoires and enable use of new knowledge and language as a tool to getting the most from the healthcare team. The positioning of CIS alongside cancer treatment services aids fuller integration of supportive care, benefiting both patients and clinicians.
本研究旨在深入了解在澳大利亚、英国和美国使用癌症信息与支持（CIS）服务的基本原理、体验、评估及结果。
2015年11月至2016年1月期间，采用半结构式访谈收集数据。电话访谈进行录音、去识别化处理、转录并进行主题分析。从三个国际CIS服务机构中各招募了10名用户（共30名）。如果参与者在2015年通过与癌症护士电话联系使用过CIS，且被认定为患者、癌症幸存者或此类人员的朋友或家庭成员，则符合纳入条件。
得出了四个主要主题，共包含25个子主题。关键主题包括：（i）使用服务的驱动因素；（ii）服务体验；（iii）影响；（iv）癌症治疗服务的辅助手段。
国际上的癌症信息与支持护士充当着专业的导航者、教育者和富有同情心的沟通者，他们“听弦外之音”，以使来电者能更好地理解自身状况并将其置于具体情境中，进而与医疗团队以及家人和朋友进行讨论。使用该服务可减少担忧、拓展支持方式，并能将新知识和语言作为从医疗团队获取最大益处的工具。将CIS与癌症治疗服务相结合有助于更全面地整合支持性护理，使患者和临床医生均受益。
