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个性化痤疮护理路径——来自《个性化痤疮:专家共识》的指导长期管理的建议

The Personalised Acne Care Pathway-Recommendations to guide longitudinal management from the Personalising Acne: Consensus of Experts.

作者信息

Tan Jerry, Alexis Andrew, Baldwin Hilary, Beissert Stefan, Bettoli Vincenzo, Del Rosso James, Dréno Brigitte, Gold Linda Stein, Harper Julie, Lynde Charles, Thiboutot Diane, Weiss Jonathan, Layton Alison M

机构信息

Windsor Clinical Research Inc, Windsor, Ontario, Canada.

Department of Medicine, University of Western Ontario, Windsor Campus, Ontario, Canada.

出版信息

JAAD Int. 2021 Oct 18;5:101-111. doi: 10.1016/j.jdin.2021.09.006. eCollection 2021 Dec.

Abstract

BACKGROUND

Acne is a chronic disease with a varying presentation that requires long-term management. Despite this, the clinical guidelines for acne offer limited guidance to facilitate personalized or longitudinal management of patients.

OBJECTIVES

To generate recommendations to support comprehensive, personalized, long-term patient management that address all presentations of acne and its current and potential future burden.

METHODS

The Personalising Acne: Consensus of Experts panel consisted of 13 dermatologists who used a modified Delphi approach to reach consensus on statements related to longitudinal acne management. The consensus was defined as ≥75% voting "agree" or "strongly agree." All voting was electronic and blinded.

RESULTS

Key management domains, consisting of distinct considerations, points to discuss with patients, and "pivot points" were identified and incorporated into the Personalised Acne Care Pathway. Long-term treatment goals and expectations and risk of (or fears about) sequelae are highlighted as particularly important to discuss frequently with patients.

LIMITATIONS

Recommendations are based on expert opinion, which could potentially differ from patients' perspectives. Regional variations in health care systems may not have been captured.

CONCLUSIONS

The Personalised Acne Care Pathway provides practical recommendations to facilitate the longitudinal management of acne, which can be used by health care professionals to optimize and personalize care throughout the patient journey.

摘要

背景

痤疮是一种表现多样的慢性疾病,需要长期管理。尽管如此,痤疮临床指南在促进患者个性化或长期管理方面提供的指导有限。

目的

制定建议,以支持全面、个性化、长期的患者管理,涵盖痤疮的所有表现及其当前和潜在的未来负担。

方法

“痤疮个性化:专家共识”小组由13名皮肤科医生组成,他们采用改良的德尔菲法就与痤疮长期管理相关的陈述达成共识。共识定义为≥75%的投票为“同意”或“强烈同意”。所有投票均通过电子方式进行且匿名。

结果

确定了关键管理领域,包括不同的考虑因素、与患者讨论的要点以及“关键点”,并将其纳入“个性化痤疮护理路径”。强调长期治疗目标和期望以及后遗症的风险(或担忧)对于经常与患者讨论尤为重要。

局限性

建议基于专家意见,这可能与患者的观点有所不同。可能未涵盖医疗保健系统的地区差异。

结论

“个性化痤疮护理路径”提供了实用建议,以促进痤疮的长期管理,医疗保健专业人员可在患者就医过程中利用这些建议优化和个性化护理。

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