Department of Health Sciences, Faculty of Medicine, Lund University, P.O. Box 157, SE-221 00, Lund, Sweden.
Department of Nursing Science, Sophiahemmet University, Stockholm, Sweden.
BMC Geriatr. 2021 Nov 27;21(1):666. doi: 10.1186/s12877-021-02633-9.
Adult children are often key carers of frail older parents providing care for a long period of time in different care contexts. However, research concerning adult children's caregiving experiences, from providing home-based care to facing the death of a parent in a nursing home is sparse. Thus, the aim was to explore the transition from living at home to moving into and living in a nursing home and the time after death from the perspective of next of kin to an older person.
A qualitative design using individual interviews with 15 adult children of older persons. The text was analysed using inductive content analysis.
One main category was identified, until death do us part. With three generic categories, living at home, living at a nursing home and time after death, and eight sub-categories. The results describe the transition when an older person lives at home and moves into and lives in a nursing home and the time after death from the perspective of next of kin.
This study highlights many examples of tasks that adult children provide over a long period of time and in different care contexts since they felt that professional care was unable to provide safe and secure care for their older parents. It also highlights the importance for staff to recognize the support that next of kin provide. Furthermore, the study reveal that staff do not offer the relief that they are obligated to provide, to enable next of kin coping with this strenuous transition in life. First after the parent died, there was time for relief since the worrying and the doing of practical things for the parent had stopped.
Current Controlled Trials NCT02708498 ; date of registration: 26 February 2016.
成年子女通常是体弱多病的老年父母的主要照顾者，他们在不同的照顾环境中为父母提供长期的照顾。然而，关于成年子女的照顾经验的研究，从提供家庭护理到面对父母在养老院去世的情况都很少。因此，本研究旨在从老年人的近亲的角度探讨从居家生活过渡到入住养老院和去世后的时间。
采用个体访谈的定性设计，对 15 名老年人的成年子女进行访谈。使用归纳内容分析法对文本进行分析。
确定了一个主要类别，即“直到死亡将我们分开”。有三个一般类别，即居家生活、入住养老院和去世后的时间，以及八个子类别。结果描述了老年人居家生活、入住养老院和去世后的时间，从近亲的角度描述了这一过渡过程。
本研究强调了成年子女在很长一段时间内和不同的照顾环境中提供的许多任务，因为他们认为专业护理无法为他们的老年父母提供安全和有保障的护理。它还强调了工作人员认识到近亲提供的支持的重要性。此外，研究表明，工作人员没有提供他们有义务提供的缓解，以使近亲能够应对这一艰难的生活过渡。首先，在父母去世后，有时间缓解，因为为父母担心和为父母做实际事情已经停止。
当前对照试验 NCT02708498；注册日期：2016 年 2 月 26 日。
