Cui Cui, Shuang-Zi Li, Cheng Wen-Jin, Wang Ting
Department of Nursing, Children's Hospital of Chongqing Medical University, Chongqing, China.
Neurological Medical Center, Children's Hospital of Chongqing Medical University, Chongqing, China.
J Pediatr Nurs. 2022 Mar-Apr;63:143-150. doi: 10.1016/j.pedn.2021.11.021. Epub 2021 Nov 26.
This study aimed to explore the relationship between family resilience, coping styles, and self-care among Chinese adolescents with epilepsy.
A total of 1238 adolescents with epilepsy in nine tertiary hospitals in China participated in a cross-sectional survey conducted from May 2018 to March 2020. Structural equation modeling was used to analyze the mediating effect.
The total scores for family resilience and coping styles were positively correlated with the total self-care status score of adolescents with epilepsy during their transition (r = 0.209, 0.202, P < 0.01). Family resilience was positively correlated with coping style (r = 0.450, P < 0.01). The modified model's fit index included χ/df = 1.970, P = 0.001, RMSEA = 0.054, TLI = 0.973, CFI = 0.978, GFI = 0.941, AGFI = 0.917, NFI = 0.956, and IFI = 0.978. The confidence interval (CI) was 0.004-0.140 for the indirect effect and 0.033-0.306 for the direct effect.
The self-care status of adolescents with epilepsy during the transitional period is closely related to coping style and family resilience. Coping style mediates family resilience and self-care status.
Healthcare teams should pay attention to the coping ability of adolescents with epilepsy to help them transition smoothly and to improve family functioning. This study provides a theoretical basis for establishing transitional care programs for adolescents with chronic illnesses. The significant mediating effect of coping style should be emphasized in modalities of healthcare that include patient participation.
本研究旨在探讨中国癫痫青少年的家庭复原力、应对方式与自我护理之间的关系。
2018年5月至2020年3月，中国9家三级医院的1238名癫痫青少年参与了一项横断面调查。采用结构方程模型分析中介效应。
家庭复原力总分和应对方式总分与癫痫青少年过渡期间的自我护理总体状况得分呈正相关（r = 0.209，0.202，P < 0.01）。家庭复原力与应对方式呈正相关（r = 0.450，P < 0.01）。修正模型的拟合指数包括χ/df = 1.970，P = 0.001，RMSEA = 0.054，TLI = 0.973，CFI = 0.978，GFI = 0.941，AGFI = 0.917，NFI = 0.956，IFI = 0.978。间接效应的置信区间（CI）为0.004 - 0.140，直接效应的置信区间为0.033 - 0.306。
癫痫青少年过渡期间的自我护理状况与应对方式和家庭复原力密切相关。应对方式在家庭复原力和自我护理状况之间起中介作用。
医疗团队应关注癫痫青少年的应对能力，以帮助他们顺利过渡并改善家庭功能。本研究为建立慢性病青少年过渡护理项目提供了理论依据。在包括患者参与的医疗模式中，应强调应对方式的显著中介作用。
