Rosales Rocío, Leon Alberto, Serna Richard W, Maslin Melissa, Arevalo Ashley, Curtin Carol
Department of Psychology, University of Massachusetts, Lowell, 850 Broadway St, Lowell, MA 01854-3059 USA.
Applied Behavior Analysis: Training Education Consultation, LLC, Hyde Park, MA USA.
Behav Anal Pract. 2021 Apr 19;14(4):974-983. doi: 10.1007/s40617-021-00572-w. eCollection 2021 Dec.
Recent statistics indicate children of Latino background are diagnosed with autism spectrum disorder (ASD) at a much later age than their non-Latino White counterparts. Once a diagnosis is made, it is critically important that families get access to evidence-based interventions, including applied behavior analysis (ABA) services. However, disadvantaging factors such as a lack of awareness of available services, poor health care access and health literacy, and language barriers may impact these families' ability to access and maintain ABA services. The purpose of this pilot study was to obtain preliminary information on the experiences of accessing and maintaining ABA services for a sample of Latino American families living in Massachusetts. We conducted structured interviews with 28 families that had a child with ASD aged 8 years or younger. Questions in the interview were related to the background and diagnostic experiences of the child; difficulties in accessing ABA services; and for those children receiving ABA services, parents' perceptions of the services. Results of the interviews are summarized, and implications for future research and service delivery are discussed.
最近的统计数据表明,拉丁裔背景的儿童被诊断患有自闭症谱系障碍(ASD)的年龄比非拉丁裔白人儿童要晚得多。一旦确诊,家庭能够获得循证干预措施,包括应用行为分析(ABA)服务就至关重要。然而,诸如对可用服务缺乏认知、医疗保健机会少和健康素养低以及语言障碍等不利因素,可能会影响这些家庭获得和维持ABA服务的能力。这项试点研究的目的是获取关于居住在马萨诸塞州的拉丁裔美国家庭样本在获得和维持ABA服务方面的经历的初步信息。我们对28个有8岁及以下自闭症谱系障碍儿童的家庭进行了结构化访谈。访谈中的问题涉及儿童的背景和诊断经历;获得ABA服务的困难;以及对于那些接受ABA服务的儿童,家长对这些服务的看法。对访谈结果进行了总结,并讨论了对未来研究和服务提供的启示。