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一项探索拔毛癖成年患者寻求治疗的国际经历的定性研究:一个挫折与需求未满足的故事。

A Qualitative Study Exploring International Experiences of Seeking Treatment for Adults With Trichotillomania: A Story of Frustration and Unmet Need.

作者信息

Roodt Chane Anne, Turner Mary, Edmondson Amanda, Keeley Philip, Kendal Sarah

机构信息

School of Human and Health Sciences, University of Huddersfield, Huddersfield, UK.

Department of Nursing & Midwifery, School of Human and Health Sciences, University of Huddersfield, Huddersfield, UK.

出版信息

J Patient Exp. 2021 Nov 29;8:23743735211060792. doi: 10.1177/23743735211060792. eCollection 2021.

DOI:10.1177/23743735211060792
PMID:34869845
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8640286/
Abstract

Trichotillomania (TTM) is a poorly understood disorder with no consensus on aetiology or epidemiology; often overlooked due to high comorbidity rates. Cross-cultural qualitative research is sparse; therefore, an international qualitative study was conducted. A generic qualitative approach with thematic analysis was used to explore data from asynchronous email interviews. The aim of this article is to report participant experiences of seeking treatment. Using a sample of 20 adults (18-55 years) from 15 different countries, this article highlights lack of access and unmet healthcare needs signifying an inadequate supply of TTM expertise globally and the need for more robust clinical guidance.

摘要

拔毛癖(TTM)是一种人们了解甚少的疾病,在病因学或流行病学方面尚未达成共识;由于共病率高,常常被忽视。跨文化定性研究很少;因此,开展了一项国际定性研究。采用通用定性方法和主题分析来探索来自异步电子邮件访谈的数据。本文旨在报告参与者寻求治疗的经历。本文以来自15个不同国家的20名成年人(18 - 55岁)为样本,强调了获得治疗的机会不足和未满足的医疗需求,这表明全球范围内拔毛癖专业知识供应不足,需要更有力的临床指导。

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本文引用的文献

1
Prevalence, gender correlates, and co-morbidity of trichotillomania.拔毛癖的流行率、性别相关性和共病性。
Psychiatry Res. 2020 Jun;288:112948. doi: 10.1016/j.psychres.2020.112948. Epub 2020 Apr 18.
2
Recent Advances in the Understanding and Treatment of Trichotillomania.拔毛癖的认识与治疗新进展
J Cogn Psychother. 2010 Feb 1;24(1):46-64. doi: 10.1891/0889-8391.24.1.46.
3
Long-term conditions and medically-unexplained symptoms: feasibility of cognitive behavioural interventions within the improving access to Psychological Therapies Programme.长期病症与医学上无法解释的症状:在改善心理治疗可及性项目中认知行为干预的可行性
J Ment Health. 2015 Dec;24(6):379-84. doi: 10.3109/09638237.2015.1022254. Epub 2015 Sep 11.
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The medically unexplained revisited.再探医学上无法解释的情况。
Med Health Care Philos. 2013 Aug;16(3):587-600. doi: 10.1007/s11019-012-9436-2.
5
Trichotillomania and its treatment: a review and recommendations.拔毛癖及其治疗:综述与建议。
Expert Rev Neurother. 2011 Aug;11(8):1165-74. doi: 10.1586/ern.11.93.
6
Trichotillomania: A current review.拔毛癖:最新综述。
Clin Psychol Rev. 2010 Mar;30(2):181-93. doi: 10.1016/j.cpr.2009.10.008. Epub 2009 Oct 30.
7
The child and adolescent trichotillomania impact project: descriptive psychopathology, comorbidity, functional impairment, and treatment utilization.儿童及青少年拔毛癖影响项目:描述性精神病理学、共病、功能损害及治疗利用情况
J Dev Behav Pediatr. 2008 Dec;29(6):493-500. doi: 10.1097/DBP.0b013e31818d4328.
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Co-morbid substance misuse and mental health problems: policy and practice in Scotland.
Am J Addict. 2007 May-Jun;16(3):147-59. doi: 10.1080/08982100701375209.
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The Trichotillomania Impact Project (TIP): exploring phenomenology, functional impairment, and treatment utilization.拔毛癖影响项目(TIP):探索现象学、功能损害及治疗利用情况。
J Clin Psychiatry. 2006 Dec;67(12):1877-88. doi: 10.4088/jcp.v67n1207.
10
Should we trust web-based studies? A comparative analysis of six preconceptions about internet questionnaires.我们应该信任基于网络的研究吗?关于网络问卷的六个先入之见的比较分析。
Am Psychol. 2004 Feb-Mar;59(2):93-104. doi: 10.1037/0003-066X.59.2.93.