King's College London, UK.
J Health Psychol. 2014 Jan;19(1):149-58. doi: 10.1177/1359105313500249. Epub 2013 Sep 20.
Patient and public involvement in health research, including mental health research, is promoted by research funders in England. However, it is poorly conceptualised. One argument is that patient and public involvement in research is an ethical imperative because those who research is for should have a stake in how it is done. This could be developed through concepts of citizenship and democratic science. More strongly, it can be argued that changing the knowledge producers will change knowledge itself. Starting with feminist standpoint epistemology, it is argued that a political conceptualisation best captures the new knowledge that marginalised health groups can produce.
患者和公众参与健康研究,包括精神健康研究,在英格兰受到研究资助者的提倡。然而,这种参与的概念理解很差。一种观点认为,患者和公众参与研究是一种道德义务,因为研究的对象应该对研究的进行方式有一定的发言权。这可以通过公民和民主科学的概念来发展。更强烈的观点认为,改变知识生产者将改变知识本身。从女权主义立场认识论出发,可以认为,政治概念化最能捕捉到边缘化健康群体可以产生的新知识。