• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

功能性神经障碍:让患者参与治疗。

Functional neurological disorder: Engaging patients in treatment.

作者信息

O'Neal Mary A, Dworetzky Barbara A, Baslet Gaston

机构信息

Department of Neurology, Brigham and Women's Hospital, United States.

Department of Psychiatry, Brigham and Women's Hospital, United States.

出版信息

Epilepsy Behav Rep. 2021 Nov 14;16:100499. doi: 10.1016/j.ebr.2021.100499. eCollection 2021.

DOI:10.1016/j.ebr.2021.100499
PMID:34877516
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8633865/
Abstract

Patients with a functional neurological disorder can be difficult to engage in treatment. The reasons for this are complex and may be related to physician, patient and health care system issues. Providers contribute to difficulties in treatment engagement by giving confusing explanations for the patient symptoms, stigmatizing patients, and not allowing patients time to voice their questions and concerns. Patient factors include a lack of engagement after an explanation of the diagnosis, resistance to treatment, family/work dynamics and prior negative experiences with the health care system. The scarcity of providers skilled in the treatment of functional neurological disorder is yet another hurdle. This article will define these barriers and discuss good clinical practices to help improve outcomes by tackling those challenges and discuss why for many patients an integrated care team approach is needed.

摘要

功能性神经障碍患者可能难以参与治疗。其原因很复杂,可能与医生、患者及医疗保健系统问题有关。医疗服务提供者对患者症状给出令人困惑的解释、羞辱患者以及不给患者时间表达疑问和担忧,这些都导致治疗参与存在困难。患者因素包括在被告知诊断后缺乏参与度、对治疗的抵触、家庭/工作动态以及既往在医疗保健系统中的负面经历。缺乏治疗功能性神经障碍技能的医疗服务提供者也是另一个障碍。本文将界定这些障碍,并讨论通过应对这些挑战来改善治疗效果的良好临床实践,还将探讨为何对许多患者而言需要采用综合护理团队的方法。

相似文献

1
Functional neurological disorder: Engaging patients in treatment.功能性神经障碍:让患者参与治疗。
Epilepsy Behav Rep. 2021 Nov 14;16:100499. doi: 10.1016/j.ebr.2021.100499. eCollection 2021.
2
The patient experience of patient-centered communication with nurses in the hospital setting: a qualitative systematic review protocol.医院环境中患者与护士以患者为中心的沟通体验:一项定性系统评价方案
JBI Database System Rev Implement Rep. 2015 Jan;13(1):76-87. doi: 10.11124/jbisrir-2015-1072.
3
The Rules of Engagement: Perspectives on Secure Messaging From Experienced Ambulatory Patient Portal Users.参与规则:来自经验丰富的门诊患者门户网站用户对安全消息传递的看法。
JMIR Med Inform. 2017 Jul 4;5(3):e13. doi: 10.2196/medinform.7516.
4
The future of Cochrane Neonatal.考克兰新生儿协作网的未来。
Early Hum Dev. 2020 Nov;150:105191. doi: 10.1016/j.earlhumdev.2020.105191. Epub 2020 Sep 12.
5
Fathers and the well-child visit.父亲与健康儿童检查
Pediatrics. 2006 Apr;117(4):e637-45. doi: 10.1542/peds.2005-1612.
6
A qualitative analysis of interprofessional healthcare team members' perceptions of patient barriers to healthcare engagement.对跨专业医疗团队成员对患者参与医疗保健的障碍认知的定性分析。
BMC Health Serv Res. 2016 Sep 20;16:493. doi: 10.1186/s12913-016-1751-5.
7
Giving voice to older adults living with frailty and their family caregivers: engagement of older adults living with frailty in research, health care decision making, and in health policy.倾听体弱老年人及其家庭照顾者的声音:让体弱老年人参与研究、医疗保健决策和卫生政策制定。
Res Involv Engagem. 2016 Jun 17;2:23. doi: 10.1186/s40900-016-0038-7. eCollection 2016.
8
A process for developing community consensus regarding the diagnosis and management of attention-deficit/hyperactivity disorder.一个就注意力缺陷/多动障碍的诊断和管理达成社区共识的过程。
Pediatrics. 2005 Jan;115(1):e97-104. doi: 10.1542/peds.2004-0953.
9
Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.不同种族文化群体成年癌症患者的姑息治疗体验:一项定性系统评价方案
JBI Database System Rev Implement Rep. 2015 Jan;13(1):99-111. doi: 10.11124/jbisrir-2015-1809.
10
Student and educator experiences of maternal-child simulation-based learning: a systematic review of qualitative evidence protocol.基于母婴模拟学习的学生和教育工作者体验:定性证据协议的系统评价
JBI Database System Rev Implement Rep. 2015 Jan;13(1):14-26. doi: 10.11124/jbisrir-2015-1694.

引用本文的文献

1
Unraveling functional neurological disorder in pediatric populations: A systematic review of diagnosis, treatment, and outcomes.揭示儿童群体中的功能性神经障碍:诊断、治疗及结果的系统评价
World J Clin Pediatr. 2025 Sep 9;14(3):105290. doi: 10.5409/wjcp.v14.i3.105290.
2
Managing functional neurological disorder: treatment recommendations for health professionals in Australia.管理功能性神经障碍:澳大利亚卫生专业人员的治疗建议。
BMJ Neurol Open. 2025 May 29;7(1):e000970. doi: 10.1136/bmjno-2024-000970. eCollection 2025.
3
Neurobehavioral therapy in functional seizures: Investigation of mechanism of action with resting-state functional magnetic resonance imaging.功能性癫痫的神经行为疗法:利用静息态功能磁共振成像研究作用机制
Epilepsia. 2025 Apr 4. doi: 10.1111/epi.18401.
4
Opinions and experience of neurologists and neurology trainees in Saudi Arabia on functional neurological disorders: a survey based study.沙特阿拉伯神经病学家和神经科受训者对功能性神经障碍的意见和经验:一项基于调查的研究。
BMC Neurol. 2024 Aug 29;24(1):302. doi: 10.1186/s12883-024-03810-0.
5
The effects of racial and socioeconomic disparities on time to diagnosis and treatment of pediatric functional seizures in the United States.美国儿科功能性癫痫诊断和治疗时间的种族和社会经济差异的影响。
Seizure. 2024 Jul;119:58-62. doi: 10.1016/j.seizure.2024.05.009. Epub 2024 May 16.
6
Content or context? A study protocol for a three-arm parallel randomised controlled trial of R-PROGRAM, a brief internet-based intervention for patients with functional seizures.内容还是语境?一项关于 R-PROGRAM 的三臂平行随机对照试验的研究方案,R-PROGRAM 是一种针对功能性癫痫患者的简短基于互联网的干预措施。
BMJ Open. 2023 Oct 4;13(10):e072835. doi: 10.1136/bmjopen-2023-072835.
7
Functional Seizure Clinics: A Proposed Financially Viable Solution to the Neurologist Supply and Demand Mismatch.功能性癫痫诊所:一种针对神经科医生供需不匹配问题的、在财务上可行的解决方案建议。
Neurol Clin Pract. 2023 Aug;13(4):e200179. doi: 10.1212/CPJ.0000000000200179. Epub 2023 Jul 6.
8
Functional Overlay Model of Persistent Post-Concussion Syndrome.持续性脑震荡后综合征的功能叠加模型
Brain Sci. 2023 Jul 4;13(7):1028. doi: 10.3390/brainsci13071028.
9
Special issue on the intersection between functional seizures and other functional neurological disorders.关于功能性癫痫发作与其他功能性神经障碍交叉领域的特刊。
Epilepsy Behav Rep. 2022 Jan 7;18:100523. doi: 10.1016/j.ebr.2021.100523. eCollection 2022.

本文引用的文献

1
Management of functional communication, swallowing, cough and related disorders: consensus recommendations for speech and language therapy.功能性沟通、吞咽、咳嗽及相关障碍的管理:言语和语言治疗共识建议。
J Neurol Neurosurg Psychiatry. 2021 Oct;92(10):1112-1125. doi: 10.1136/jnnp-2021-326767. Epub 2021 Jul 1.
2
Functional Neurologic Disorders: The Need for a Model of Care.功能性神经障碍:对一种护理模式的需求。
Neurol Clin Pract. 2021 Apr;11(2):e152-e156. doi: 10.1212/CPJ.0000000000000949.
3
Stigma and functional neurological disorder: a research agenda targeting the clinical encounter.耻辱感与功能性神经障碍:一项针对临床诊疗的研究议程
CNS Spectr. 2020 Dec 3:1-6. doi: 10.1017/S1092852920002084.
4
Psychological Profiles and Clinical Clusters of Patients Diagnosed With Functional Neurological Disorder.被诊断为功能性神经障碍患者的心理特征与临床分组
Front Neurol. 2020 Oct 15;11:580267. doi: 10.3389/fneur.2020.580267. eCollection 2020.
5
Using Patient-Centered Clinical Neuroscience to Deliver the Diagnosis of Functional Neurological Disorder (FND): Results from an Innovative Educational Workshop.运用以患者为中心的临床神经科学来诊断功能性神经疾病(FND):来自创新性教育研讨会的结果。
Acad Psychiatry. 2021 Apr;45(2):185-189. doi: 10.1007/s40596-020-01324-8. Epub 2020 Oct 14.
6
Occupational therapy consensus recommendations for functional neurological disorder.职业治疗功能性神经障碍共识建议。
J Neurol Neurosurg Psychiatry. 2020 Oct;91(10):1037-1045. doi: 10.1136/jnnp-2019-322281. Epub 2020 Jul 30.
7
Cognitive behavioural therapy for adults with dissociative seizures (CODES): a pragmatic, multicentre, randomised controlled trial.针对患有分离性癫痫的成年人的认知行为疗法(CODES):一项实用的多中心随机对照试验。
Lancet Psychiatry. 2020 Jun;7(6):491-505. doi: 10.1016/S2215-0366(20)30128-0. Epub 2020 May 20.
8
Motivational Interviewing Techniques to Improve Psychotherapy Adherence and Outcomes for Patients With Psychogenic Nonepileptic Seizures.改善精神性非癫痫性发作患者心理治疗依从性及疗效的动机性访谈技巧
J Neuropsychiatry Clin Neurosci. 2020 Spring;32(2):125-131. doi: 10.1176/appi.neuropsych.19020045. Epub 2019 Aug 30.
9
Dissociative (non-epileptic) seizures: tackling common challenges after the diagnosis.分离性(非癫痫性)发作:诊断后的常见挑战应对
Pract Neurol. 2019 Aug;19(4):332-341. doi: 10.1136/practneurol-2018-002177. Epub 2019 Mar 16.
10
Adherence with psychotherapy and treatment outcomes for psychogenic nonepileptic seizures.精神性非癫痫性发作的心理治疗依从性与治疗结果。
Neurology. 2019 Feb 12;92(7):e675-e679. doi: 10.1212/WNL.0000000000006848. Epub 2019 Jan 4.