Pharmaceutical & Healthcare Management and Innovation, Department of Biomedical and Molecular Sciences, Queen's University, Kingston, ON K7L 3N6, Canada.
Global Institute of Psychosocial, Palliative and End-of-Life Care, University of Toronto, Toronto, ON M5S 1A4, Canada.
Curr Oncol. 2021 Oct 21;28(6):4273-4280. doi: 10.3390/curroncol28060363.
The lack of timely symptom reporting remains a barrier to effective symptom management and comfort for patients with cancer-related palliative care needs. Poor symptom management at home can lead to unwanted outcomes, such as emergency department visits and death in hospital. We developed and evaluated RELIEF, a remote symptom self-reporting app for community patients with palliative care needs. A pilot feasibility study was conducted at a large, community hospital in Ontario, Canada. Patients self-reported their symptoms each morning using validated clinical symptom measures and RELIEF would alert for worsening or severe symptoms. RELIEF alerts were monitored by palliative care nurses who would then contact patients to determine if appropriate clinical intervention could be initiated to avoid unnecessary emergency department visits. A total of 20 patients were recruited to use RELIEF for two months. Patients completed 80% of daily self-report assessments; 133 alerts were trigged, half of which required clinical intervention. No patient visited the emergency department for symptom management during the study. Clinical staff estimated five emergency department visits were avoided because of RELIEF-saving an estimated cost of over CAD 60,000. RELIEF is a feasible and acceptable method for the remote monitoring of patients with palliative care needs through regular symptom self-reporting.
及时报告症状仍然是癌症相关姑息治疗患者有效管理症状和舒适的障碍。在家中症状管理不善可能导致不良后果,例如急诊就诊和医院死亡。我们开发并评估了 RELIEF,这是一款适用于有姑息治疗需求的社区患者的远程症状自我报告应用程序。该研究在加拿大安大略省的一家大型社区医院进行了试点可行性研究。患者每天早上使用经过验证的临床症状测量工具自行报告症状,而 RELIEF 则会对症状恶化或严重程度发出警报。姑息治疗护士会监测 RELIEF 警报,然后与患者联系,以确定是否可以启动适当的临床干预措施,避免不必要的急诊就诊。共有 20 名患者被招募使用 RELIEF 两个月。患者完成了 80%的日常自我报告评估;触发了 133 次警报,其中一半需要临床干预。在研究期间,没有患者因症状管理而前往急诊就诊。临床工作人员估计,由于 RELIEF,避免了五次急诊就诊,估计节省了超过 60,000 加元的费用。RELIEF 通过定期症状自我报告,是一种可行且可接受的远程监测姑息治疗患者的方法。