Dymecka Joanna, Gerymski Rafał, Tataruch Rafał, Bidzan Mariola
Department of Health Psychology and Quality of Life, Institute of Psychology, Opole University, 45-040 Opole, Poland.
Faculty of Physical Education and Physiotherapy, Opole University of Technology, 45-758 Opole, Poland.
J Clin Med. 2022 Mar 19;11(6):1716. doi: 10.3390/jcm11061716.
Multiple sclerosis is a progressive demyelinating disease of the central nervous system that can lead to permanent disability and significantly impact the quality of life. The present study explores the relationship between neurological disability and disease symptoms, quality of life, and the level of sense of coherence, which is an important resource for coping with the disease. EDSS, GNDS, SOC-29, and MSIS-29 were used in the presented study. The study group consisted of 137 people diagnosed with multiple sclerosis. The study showed the correlation between most of the analyzed variables. Mood disability and fatigue were significant predictors of the sense of coherence and explained 34% of its variance. Physical disability and fatigue served as significant predictors of the physical aspect of quality of life, explaining 49% of its variance. Fatigue and sense of coherence were significant predictors of the psychological aspect of quality of life, explaining 47% of the variance. In studies on a group of people with multiple sclerosis, it is worth considering, in addition to the level of disability, also invisible symptoms, such as fatigue or mood disability, which are important for the quality of life and the level of resources. As this study suggests, a sense of coherence is a resource essential for the quality of life of people with disabilities.
多发性硬化症是一种中枢神经系统的进行性脱髓鞘疾病，可导致永久性残疾并严重影响生活质量。本研究探讨神经功能残疾与疾病症状、生活质量以及连贯感水平之间的关系，连贯感是应对该疾病的一项重要资源。本研究使用了扩展残疾状态量表（EDSS）、神经功能缺损量表（GNDS）、29项连贯感量表（SOC-29）和29项多发性硬化症影响量表（MSIS-29）。研究组由137名被诊断为多发性硬化症的患者组成。研究表明，大多数分析变量之间存在相关性。情绪残疾和疲劳是连贯感的重要预测因素，解释了其34%的方差。身体残疾和疲劳是生活质量身体方面的重要预测因素，解释了其49%的方差。疲劳和连贯感是生活质量心理方面的重要预测因素，解释了47%的方差。在对一组多发性硬化症患者的研究中，除了残疾程度外，还值得考虑疲劳或情绪残疾等无形症状，这些对生活质量和资源水平很重要。正如本研究所示，连贯感是残疾人士生活质量的一项重要资源。
