Occupational Hearing Loss for Platinum Miners in South Africa: A Case Study of Data Sharing Practices and Ethical Challenges in the Mining Industry.

BACKGROUND

The relevant legislation ensures confidentiality and has paved the way for data handling and sharing. However, the industry remains uncertain regarding big data handling and sharing practices for improved healthcare delivery and medical research.

METHODS

A semi-qualitative cross-sectional study was used which entailed analysing miners' personal health records from 2014 to 2018. Data were accessed from the audiometry medical surveillance database (n = 480), the hearing screening database (n = 24,321), and the occupational hygiene database (n = 15,769). Ethical principles were applied to demonstrate big data protection and sharing.

RESULTS

Some audiometry screening and occupational hygiene records were incomplete and/or inaccurate (N = 4675). The database containing medical disease and treatment records could not be accessed. Ethical challenges included a lack of clarity regarding permission rights when sharing big data, and no policy governing the divulgence of miners' personal and medical records for research.

CONCLUSION

This case study illustrates how research can be effectively, although not maliciously, obstructed by the strict protection of employee medical data. Clearly communicated company policies should be developed for the sharing of workers' records in the mining industry to improve HCPs.