Zucchetti Giulia, Ciappina Sabrina, Bellini Simona, Dionisi Vici Margherita, Spadea Manuela, Biasin Eleonora, Fagioli Franca
Pediatric Oncology Department, Regina Margherita Children's Hospital, AOU Città della Salute e della Scienza di Torino, Turin, Italy.
Transition Unit for Childhood Cancer Survivors, Città della Salute e della Scienza Hospital, Turin, Italy.
J Adolesc Young Adult Oncol. 2022 Apr;11(2):202-210. doi: 10.1089/jayao.2021.0037. Epub 2022 Jan 24.
The purpose of the study was to create in Italian a transition protocol survey to monitor the readiness of childhood, adolescent, and young adult (CAYA) cancer survivors who are undergoing transition from pediatric to adult health care. A protocol could support clinical practice through the proposal of individualized transition care pathways for CAYA survivors and inform future scientific studies that focus on barriers to successful transition. Three international questionnaires that investigate the biopsychosocial issues and needs of survivors were subjected to the Forward and Backward Translation process. Following this, CAYA survivors were recruited from September 2019 to August 2020 in the pediatric oncology centers of the Interregional Pediatric Oncology Network of Piedmont and the Aosta in Italy to participate in cognitive interviews as part of the validation and cultural adaptation process of the questionnaires, which will form the transition protocol survey. Revisions and cognitive interviews with 40 CAYA survivors identified any inadequate expressions and resolved any concepts of misunderstanding or cultural unsuitability for the Italian translation. Overall, they found the scales to be easily understandable, and an Italian version of the scales was produced to create the final transition protocol survey. The transition protocol survey might be used as a valid tool to highlight critical issues to support sustainable transition processes between Italian oncology centers. The protocol can be implemented into clinical practice thus offering CAYA the possibility of resolving some needs, receiving personalized support, and surveillance before the transition.
该研究的目的是创建一份意大利语的过渡方案调查问卷，以监测正在从儿科医疗向成人医疗过渡的儿童、青少年和青年（CAYA）癌症幸存者的准备情况。一份方案可以通过为CAYA幸存者提出个性化的过渡护理路径来支持临床实践，并为未来关注成功过渡障碍的科学研究提供信息。对三份调查幸存者生物心理社会问题和需求的国际问卷进行了正向和反向翻译。此后，于2019年9月至2020年8月在意大利皮埃蒙特和奥斯塔地区儿科肿瘤网络的儿科肿瘤中心招募CAYA幸存者，让他们参与认知访谈，作为问卷验证和文化适应过程的一部分，这些问卷将构成过渡方案调查问卷。对40名CAYA幸存者进行的修订和认知访谈确定了任何不恰当的表述，并解决了意大利语翻译中任何误解或文化不适用的概念。总体而言，他们发现这些量表易于理解，并制作了意大利语版量表以创建最终的过渡方案调查问卷。过渡方案调查问卷可能会被用作一种有效的工具，以突出关键问题，支持意大利肿瘤中心之间的可持续过渡过程。该方案可以应用于临床实践，从而为CAYA提供在过渡前解决一些需求、获得个性化支持和监测的可能性。
