Åbo Akademi University, Finland.
Novia University of Applied Sciences, Finland.
Nurs Ethics. 2022 May;29(3):696-708. doi: 10.1177/09697330211035498. Epub 2022 Feb 10.
Advance care planning gives patients and their family members the possibility to consider and make decisions regarding future care and medical procedures.
To explore the view of people in the early stage of dementia on planning for future care.
The study is a qualitative interview study with a semistructured interview guide. The data were analyzed according to the Qualitative Analysis Guide of Leuven.
Dementia nurses assisted in the recruiting of people with dementia for participation in the study. Study information was mailed to 95 people with early stage dementia. Ten people with dementia and eight caregiver spouses participated in the study.
People with dementia belong to a vulnerable patient group, and care was taken in the areas of informed consent and accessible information.
The views of people with dementia are characterized by a complex storyline involving tensions and movement within the themes of wants, beliefs, and levels of insight. Participants wanted to think about the future but also wanted to live in the here and now.
High demands are placed on the advance care planning process for people with dementia and their family caregivers. A dignity-enhancing approach in dementia care emphasizes the dignity of and respect for this vulnerable and care-dependent patient group.
The process of advance care planning in dementia care needs to go beyond person-centered care to a relationship-centered process. The illness trajectory and the impact on autonomy need to be taken into consideration.
预先护理计划使患者及其家属有机会考虑并决定未来的护理和医疗程序。
探讨处于痴呆早期阶段的人对未来护理规划的看法。
这是一项定性访谈研究，采用半结构化访谈指南。根据鲁汶定性分析指南对数据进行分析。
痴呆症护士协助招募参与研究的痴呆症患者。研究信息以邮件形式发送给 95 名早期痴呆症患者。10 名痴呆症患者和 8 名照顾者配偶参与了这项研究。
痴呆症患者属于弱势群体，在知情同意和提供易懂信息方面给予了特别关注。
痴呆症患者的观点以复杂的故事情节为特征，主题涉及愿望、信念和洞察力水平之间的紧张关系和动态变化。参与者希望考虑未来，但也希望活在当下。
对痴呆症患者及其家庭照顾者的预先护理计划过程提出了很高的要求。在痴呆症护理中，以尊严为中心的方法强调对这一脆弱和依赖护理的患者群体的尊严和尊重。
痴呆症护理中的预先护理计划过程需要超越以患者为中心的护理，转向以关系为中心的过程。需要考虑疾病轨迹及其对自主权的影响。
