Hodgson Jennifer, Welch Melissa, Tucker Emily, Forbes Thompson, Pye Joseph
Department of Human Development and Family Science, East Carolina University, Greenville, NC, USA.
Department of Community Health and Family Medicine, University of Florida, College of Medicine, Gainesville, FL, USA.
J Patient Exp. 2022 Feb 9;9:23743735221077528. doi: 10.1177/23743735221077528. eCollection 2022.
Innovations in electronic health record (EHR) systems invite new patient and family engagement methods and create opportunities to reduce healthcare disparities. However, many patients and their identified support persons (ie, proxies) are unsure how to interface with the technology. This phenomenological qualitative study served as a pilot study to investigate the patient, proxy, and provider lived experiences utilizing patient-facing EHR portals. Individual interviews and focus groups were utilized to collect qualitative data from 21 patient, proxy, and healthcare provider participants across 3 time points. Colaizzi's phenomenological data analysis method was utilized to interpret the data. Four themes emerged highlighting critical benefits and obstacles for patients and support persons interfacing with a patient portal: (a) agency, (b) connection, (c) support, and (d) technology literacy. Results help highlight strategies and dispel myths essential to advancing patient and family engagement using EHR patient portal systems. The study's outcomes reflect recommendations for onboarding proxies and improving patient/family engagement and family-centered care models.
电子健康记录（EHR）系统的创新催生了新的患者及家属参与方式，并为减少医疗保健差距创造了机会。然而，许多患者及其指定的支持人员（即代理人）不确定如何与该技术交互。这项现象学定性研究作为一项试点研究，旨在调查患者、代理人和医疗服务提供者使用面向患者的EHR门户的生活体验。通过个人访谈和焦点小组，在3个时间点从21名患者、代理人和医疗服务提供者参与者那里收集定性数据。采用科莱齐的现象学数据分析方法来解释数据。出现了四个主题，突出了患者和支持人员与患者门户交互的关键益处和障碍：（a）自主性，（b）联系，（c）支持，以及（d）技术素养。研究结果有助于突出推进使用EHR患者门户系统的患者及家属参与所必需的策略，并消除误解。该研究的成果反映了关于接纳代理人以及改善患者/家属参与和以家庭为中心的护理模式的建议。
