Samuel G, Lucivero F, Lucassen A M
Clinical Law and Ethics at Southampton (CELS), University of Southampton, Southampton General Hospital, Southampton, UK.
Department of Global Health and Social Medicine, King's College London, London, UK.
Glob Bioeth. 2022 Feb 24;33(1):50-64. doi: 10.1080/11287462.2021.1997428. eCollection 2022.
This paper argues that as we move to redefine global bioethics, there is a need to be attentive to the ethical issues associated with the environmental sustainability of data and digital infrastructures in global health systems. We show that these infrastructures have thus far featured little in environmental impact discussions in the context of health, and we use a case study approach of biobanking to illustrate this. We argue that this missing discussion is problematic because biobanks have environmental impacts associated with data and digital infrastructures. We consider several ethical questions to consider these impacts: what ethical work does the concept of environmental sustainability add to the debate; how should this concept be prioritised in decision-making; and who should be responsible for doing so? We call on global bioethics to play a role in advancing this dialogue and addressing these questions.
本文认为，在我们着手重新定义全球生物伦理学时，有必要关注全球卫生系统中与数据及数字基础设施的环境可持续性相关的伦理问题。我们表明，这些基础设施在卫生领域的环境影响讨论中迄今鲜有涉及，我们采用生物样本库的案例研究方法对此加以说明。我们认为这种缺失的讨论存在问题，因为生物样本库具有与数据及数字基础设施相关的环境影响。我们考量了几个伦理问题以审视这些影响：环境可持续性概念为这场辩论增添了哪些伦理作用；在决策过程中应如何优先考虑这一概念；以及应由谁负责这样做？我们呼吁全球生物伦理学在推进这一对话及解决这些问题方面发挥作用。
