心理健康服务使用者对电子健康记录存储和使用的态度。

Attitudes of Mental Health Service Users Toward Storage and Use of Electronic Health Records.

作者信息

Bakken Victoria, Koposov Roman, Røst Thomas Brox, Clausen Carolyn, Nytrø Øystein, Leventhal Bennett, Westbye Odd Sverre, Koochakpour Kaban, Mandahl Arthur, Hafstad Hege, Skokauskas Norbert

机构信息

Regional Centre for Child and Youth Mental Health and Child Welfare (RKBU) Central Norway, Department of Mental Health, Faculty of Medicine and Health Sciences (Bakken, Clausen, Westbye, Skokauskas), and Department of Computer Science (Nytrø, Koochakpour), Norwegian University of Science and Technology, Trondheim, Norway; RKBU Northern Norway, Arctic University of Norway, Tromsø (Koposov); Sechenov First Moscow State Medical University, Moscow (Koposov); Vivit AS, Trondheim, Norway (Røst); Department of Psychiatry, Division of Child and Adolescent Psychiatry, University of California, San Francisco (Leventhal); Department of Child and Adolescent Psychiatry, St. Olav's University Hospital, Trondheim, Norway (Westbye); Vårres Regional User-Controlled Center of Central Norway, Trondheim, Norway (Mandahl, Hafstad).

出版信息

Psychiatr Serv. 2022 Sep 1;73(9):1013-1018. doi: 10.1176/appi.ps.202100477. Epub 2022 Mar 16.

DOI:10.1176/appi.ps.202100477

PMID:35291817

Abstract

OBJECTIVE

Electronic health records (EHRs) are used for both clinical practice and research. Because mental health service users' views are underrepresented in perspectives on EHR use, the authors examined service users' awareness, attitudes, and opinions about EHR data storage and sharing.

METHODS

A mixed-methods, cross-sectional design was used to examine attitudes of 253 Norwegian mental health service users who were recruited online to complete a quantitative and qualitative (free-text) survey about EHR utilization.

RESULTS

Most participants were aware that EHRs were stored (95%) and shared (58%). Most thought that patients benefited from EHR storage (84%), trusted authorities with EHR sharing (71%), were willing to share their EHRs to help others (75%), felt they benefited from EHR sharing (75%), and thought EHR sharing was ethical for health care and research (71%). Fewer were aware of EHR sharing for research (36%), and 62% were aware that shared data were anonymized. Of the participants, 69% recognized privacy risks associated with sharing. Lack of transparency and skepticism about anonymization and misuse of EHR data were concerns and perceived risks. Mental health service users thought that EHRs should be shared for policy development (81%), education and training (85%), improving care quality (89%), research (91%), and clinical decision support (81%).

CONCLUSIONS

Participants were aware of and supported EHR sharing for research and clinical care. They supported sharing to help others and were willing to fully participate in clinical care and research, as well as to share EHR information for their own care, research, and the care of others.

摘要

目的

电子健康记录（EHRs）用于临床实践和研究。由于心理健康服务使用者的观点在EHR使用的相关观点中未得到充分体现，作者研究了服务使用者对EHR数据存储和共享的认知、态度及看法。

方法

采用混合方法的横断面设计，对253名挪威心理健康服务使用者的态度进行研究，这些使用者通过网络招募，完成一项关于EHR利用的定量和定性（自由文本）调查。

结果

大多数参与者知晓EHRs被存储（95%）和共享（58%）。大多数人认为患者从EHR存储中受益（84%），信任有权限共享EHR的机构（71%），愿意分享自己的EHR以帮助他人（75%），感觉自己从EHR共享中受益（75%），并认为EHR共享在医疗保健和研究方面是符合伦理的（71%）。知晓EHR用于研究共享的人较少（36%），62%的人知晓共享数据是匿名的。在参与者中，69%认识到与共享相关的隐私风险。对EHR数据匿名化和滥用缺乏透明度及怀疑是人们关注的问题和感知到的风险。心理健康服务使用者认为EHR应被用于政策制定（81%）、教育和培训（85%）、提高护理质量（89%）、研究（91%）以及临床决策支持（81%）。