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德国偏头痛患者医疗护理与预防性治疗体验调查（EPISCOPE）结果

Results of the gErman migraine PatIent Survey on medical Care and prOPhylactic treatment Experience (EPISCOPE).

作者信息

Groth Marie, Katsarava Zaza, Ehrlich Marc

机构信息

Novartis Pharma GmbH, Nuremberg, Germany.

Evangelical Hospital Unna, Unna, Germany.

出版信息

Sci Rep. 2022 Mar 17;12(1):4589. doi: 10.1038/s41598-022-08716-w.

DOI:10.1038/s41598-022-08716-w
PMID:35301435
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8931117/
Abstract

Migraine affects about 12% of the worldwide population causing substantial personal and societal burden. Yet, migraine remains underdiagnosed and untreated. EPISCOPE was a web-based survey among a German migraine patient cohort to characterize the medical care and prophylactic treatment status aiming to identify unmet needs. Potential migraine patients were identified via an ID Migraine screener. Their socioeconomic background, medical care experience, acute medication use, as well as use and experience of migraine prophylaxis was assessed by a questionnaire. Data of 29,011 participants was collected. 21,504 participants were identified as migraine patients. Patients with a higher number of monthly migraine days experienced better medical care. However, even among chronic migraine patients, 54% were not consulting a physician, 30% did not feel well-informed about medication overuse and 48% had never tried prophylactic migraine treatment. Among patients receiving prophylactic migraine treatment, up to 33% were not satisfied with their prophylaxis due to insufficient efficacy. Taken together, EPISCOPE describes the largest German migraine patient cohort so far. The survey provides detailed and valuable insight into the current medical care and prophylactic treatment situation in a highly developed European country and identifies reasons why the medical care of migraine patients is still insufficient.

摘要

偏头痛影响着全球约12%的人口，造成了巨大的个人和社会负担。然而，偏头痛仍然诊断不足且治疗不充分。EPISCOPE是一项针对德国偏头痛患者队列开展的基于网络的调查，旨在描述医疗护理和预防性治疗状况，以确定未满足的需求。潜在的偏头痛患者通过偏头痛识别筛查工具进行识别。通过问卷调查评估他们的社会经济背景、医疗护理经历、急性药物使用情况以及偏头痛预防的使用和经历。收集了29,011名参与者的数据。其中21,504名参与者被确定为偏头痛患者。每月偏头痛天数较多的患者得到了更好的医疗护理。然而，即使在慢性偏头痛患者中，54%的患者未咨询医生，30%的患者对药物过度使用了解不足，48%的患者从未尝试过偏头痛预防性治疗。在接受偏头痛预防性治疗的患者中，高达33%的患者因疗效不足对其预防治疗不满意。总体而言，EPISCOPE描述了迄今为止最大的德国偏头痛患者队列。该调查为一个高度发达的欧洲国家当前的医疗护理和预防性治疗状况提供了详细且有价值的见解，并确定了偏头痛患者医疗护理仍然不足的原因。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/39ec/8931117/5a350285f1b9/41598_2022_8716_Fig5_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/39ec/8931117/156f195f65a9/41598_2022_8716_Fig1_HTML.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/39ec/8931117/156f195f65a9/41598_2022_8716_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/39ec/8931117/814ad72f6025/41598_2022_8716_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/39ec/8931117/96459bb9bc56/41598_2022_8716_Fig3_HTML.jpg
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