School of Psychology, 8818Dublin City University, Dublin, Ireland.
Dementia (London). 2022 May;21(4):1304-1327. doi: 10.1177/14713012221077531. Epub 2022 Mar 25.
While it is less common, young onset dementia manifests at a significantly younger age (< 65). Many people with young onset dementia are parents; however, little is known about impact of the condition on children and young adults. A qualitative thematic analysis was conducted to synthesise the literature on the perspectives of children and young adults with a parent living with young onset dementia.
Electronic databases were searched in order to identify all peer-reviewed literature in relation to the perspectives of children and young adults with a parent living with young onset dementia. A thematic analysis was conducted on the relevant literature.
The electronic database search resulted in 15 full texts articles. Four main themes with related subthemes emerged from the thematic analysis. The four main themes were: changing family dynamics; psychological and physical strain; stigma and coping strategies.
The current synthesis outlines the perspectives of children and young adults with a parent living with young onset dementia. There is a significant lack of research in this area which adds to the stereotypical view of dementia as an older person's disease. This can lead to children and young adults being impacted by lack of awareness and stigma resulting in significant psychosocial problems. As the number of people living with dementia (including young onset) is set to increase, future research with children and young adults with a parent with young onset dementia is important in order to better support this cohort.
虽然较少见，但早发性痴呆在明显更年轻时发病（<65 岁）。许多早发性痴呆患者是父母；然而，人们对这种疾病对儿童和青年的影响知之甚少。进行了一项定性主题分析，以综合有关父母患有早发性痴呆的儿童和青年观点的文献。
为了确定与父母患有早发性痴呆的儿童和青年观点相关的所有同行评议文献，对电子数据库进行了搜索。对相关文献进行了主题分析。
电子数据库搜索产生了 15 篇全文文章。主题分析产生了四个主要主题和相关的子主题。四个主要主题是：家庭动态变化；心理和身体压力；污名和应对策略。
目前的综合概述了父母患有早发性痴呆的儿童和青年的观点。该领域的研究严重不足，这增加了痴呆症是老年人疾病的刻板印象。这可能导致儿童和青年因缺乏意识和污名而受到影响，从而导致严重的心理社会问题。随着痴呆症（包括早发性）患者人数的增加，对父母患有早发性痴呆的儿童和青年进行未来研究很重要，以便更好地支持这一群体。
